Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

MDI Christmas Activities 2020

MDI will be providing a number of special, fun Christmas Social Events and Activities that will be taking place over the next several weeks that maybe of interest to you and your family during these usual times. The below festive events are guaranteed to bring us together for lots of fun, games and surprises and they are free to attend too.

MDI Family Fun Christmas Event for Children and their Families

The event will be hosted by our local Youth Workers along with zoomparty.ie and is an opportunity for you to bring your children and family together with other MDI young members from around the country for some Christmas themed fun mini games, quizzes and prizes. There will be a special magic show as well as a special appearance by the big guy himself.

 

 

MDI Members Christmas Adult Events
    • MDI Comedy Gameshow Event, Friday 4th of December, 6pm – 7:15pm via zoom
    • MDI Twelve Games of Christmas Event, Friday 11th of December, 6pm – 7:15pm via zoom
Both events will be hosted by our local Family Support Workers along with zoomparty.ie and is an opportunity for you and family to come together this year with other MDI members from around the country and have some much-needed fun and from your own living room . They are Christmas themed party evenings, so you can dress to impress in your festive finery, gather your closest around you, some drinks and nibbles and the host will lead you through some festive games and challenges, with prizes along the way!

 

 

 

MDI Christmas Cards 

MDI Christmas Cards for 2020 are now available to order! Designs for this year’s Christmas cards were selected from entries submitted by MDI members of all ages from around Ireland. Each pack of cards costs €7 and includes 12 cards featuring our six chosen designs.

To order your 2020 Christmas cards, click the link below:

MDI Christmas Cards 2020

You can also email Patrick@mdi.ie or contact your MDI support worker. 

 

 

 

Christmas Coffee Morning – Mince Pie For MDI, Fundraiser

This year, MDI’s Christmas Coffee Mornings are going online! We are asking members, families and friends to organise your own virtual coffee morning and to ‘Have a Mince Pie for MDI’ together, while we still remain apart. You can host your Christmas Coffee Morning whenever you like – even in the Afternoon! – and during your event we are asking everyone to pick up their phone and text to donate to MDI.  While we won’t have our usual hosting packs available this year, we will be send out Digital Hosting packs to help you prepare your Christmas Coffee Morning. 

To sign up to host your own event, click the link below

Christmas Coffee Morning 2020

For more information, email Patrick@mdi.ie.

 

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified