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October 27th, 2021
Public and Participant Involvement in Research (PPI)
Muscular Dystrophy Ireland are inviting people living with neuromuscular conditions, their carers, and their families, to join a panel of PPI contributors. The purpose of the PPI panel is to support research and researchers seeking new treatments and therapies for neuromuscular conditions.
This is an opportunity for people with neuromuscular conditions to voice their opinions, experiences and concerns and influence what research is carried out.
As a PPI contributor you are not a participant in a research study but a valuable member of the research team, actively involved in the decision-making process. You bring a wealth of expertise from your lived experience of neuromuscular conditions and sharing these experiences will inform researchers what is important to individuals affected by neuromuscular conditions.
For more details see: PPI Leaflet PDF