Privacy Notice: Muscular Dystrophy Ireland-Dr John Roche Education Bursary

Muscular Dystrophy Ireland is the data controller of the personal data held in relation to applications for the bursary.

MDI takes its data protection obligations very seriously. MDI shall treat all personal information with the utmost confidentiality in line with the standards of data protection required by the EU General Data Protection Regulation (GDPR). Access to any personal information you give us when making an application for the bursary is limited by permissions to only those staff and volunteers who need access to manage, assess and respond to your application.

Personal data
Personal data in our application process for this bursary has come directly from you from your application form. The categories of personal information held in relation to your application are for the most part personal data relating to your identity, including contact information, and personal circumstances.

Use of personal data
MDI will use your personal information for the purposes of:
• Reviewing and managing your application for the bursary
• Communications with you on these matters
• Reporting on our activities in relation to the bursary, for regulatory, management and quality purposes.

Legal basis for processing and data retention
Your personal details are necessary for MDI to review your application for the bursary and to communicate the outcome of the selection process and the terms of any award with you.
We will process and retain your personal information relating to your application in line with MDI’s Data Retention Schedule. We will only process the data for the duration that the data is required to fulfil the purpose for which it was collected.

Special category personal data
When applying for the bursary you may be required to provide sensitive personal data relating for example to your disability or personal circumstances. Any sensitive personal data of this nature provided as part of your application will only be used for the purposes of assessing and making a decision relating to your application.

Your rights
If you have any questions relating to your personal information and your information rights, including right of access, rectification and erasure, please contact Data Protection, Muscular Dystrophy Ireland, 75 Lucan Road, Chapelizod, Dublin D20 6414. Email: Tel: 01 623 641

Details of the Supervisory Authority
Irish Office of the Data Protection Commission
If you have a query, concern or complaint regarding a data protection matter, you can engage with the Data Protection Commission in the following ways:
• By webform on their website
• By post: 21 Fitzwilliam Square South, Dublin, D02 RD28.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified