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Notice of AGM 2020

NOTICE IS HEREBY GIVEN that the Annual General Meeting (“AGM”) of Muscular Dystrophy Society of Ireland Company Limited by Guarantee (the “Company”) will be held at the registered office,
75 Lucan Road, Chapelizod, Dublin 20, D20 DR77

on Saturday, 12th September 2020 at 12.30 pm.

Due to the current Covid 19 pandemic and restrictions on the movement of people and taking into consideration the health and safety of staff and members, the Board of MDI request that members do not physically attend at the Annual General Meeting but attend by Zoom Conference.  The Board of MDI have determined that the AGM will be held with two directors in attendance namely:  Mr. Ephraim Purcell, Treasurer and member of the Board and Ms. Una McCourt, member of the Board.

The links below will enable you to download all the relevant materials that you will need for the AGM:

  1. AGM 2020 Notice to Members
  2. Minutes 22nd June 2019
  3. Audited Financial Statements 31st December 2019
  4. MDI draft Constitution 22nd January 2020 initialled by Chairperson
    1. Draft Constitution Admendments
  5. Proxy Form 2020
  6. Profiles of Proposed Directors

Please confirm your attendance by 5pm on Friday the 4th of September 2020 by emailing Company Secretary, Ms. Hazel Bridcut at mdisecretary@mdi.ie or free-phone 1800 245300 and your details will be noted and passed to Company Secretary, Ms. Hazel Bridcut in order for Zoom details to be forwarded to those who register their attendance.

Please note that only paid-up members who have paid their annual subscription on or before 23rd March 2020 can be nominated for election to the Board of Directors and vote at the AGM on any resolutions. 

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified