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Coronavirus Update regarding MDI activities

March 12th, 2020

MDI wishes to let our members know that we are continuing to monitor developments in relation to the coronavirus and to evaluate potential steps to safeguard the health and wellbeing of members and staff.

In the interest of protecting members who may be more at risk if they catch the coronavirus, we wish to let you know that we have deferred the following activities for the next two weeks, starting 12 March 2020:

Home visits, case meetings, general meetings, events, and outings with Family Support Workers and Youth Workers.

We are still here for you, and our Family Support Workers and Youth Workers will continue to offer our support and information services by phone, text, email and Zoom video conferencing to members. (We will follow up with instructions on how to use Zoom.) We wish to acknowledge that it may be a worrying and isolating time for some − we are here if you’d like to talk about anything. We also encourage you to keep checking for updates from the following, reliable websites:

If you have any concerns, please contact your Family Support Worker or MDI Head Office 01 6236414.

For a mix of videos that explain how to use free video-conferencing Zoom, click on this link

https://www.youtube.com/watch?v=HqncX7RE0wM&list=RDCMUC2SxmE4C-KAQuHaEfHVymgQ&start_radio=1&t=0&t=4

 

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Categories: News

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified