AGM-2022

August 31st, 2022

Muscular Dystrophy Ireland

Annual General Meeting

Saturday 24 September 2022

12.30pm

Muscular Dystrophy of Ireland Company Limited by Guarantee will hold its 2022 Annual General Meeting (“AGM”) on Saturday, 24 September 2022 at 12.30pm at the registered office of the Company at 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 and, for members using Zoom facility, at the member’s home address as recorded in the register of members of the Company.

This year, the board has made the decision that the AGM process will be carried out in a hybrid manner, electronically by Zoom facility and in person at MDI Office at 75 Lucan Road, Chapelizod, Dublin D20 DR77.

 The links below will enable you to download all the relevant materials that you will need for the AGM:

Please note that there are twelve vacancies on the Board of Directors this year, as notified on 8 August 2022. We received eight valid nominations by close of the nomination deadline on 19 August 2022. These nominations are in accordance with our nomination procedure as stated in our letter of 8 August 2022. Therefore, there will not be an election at the AGM on 24 September 2022. Please see biographies of proposed directors here.

Could you please register your attendance by 5pm on Friday the 16 September 2022 by emailing Acting Company Secretary, Ms. Una McCourt at mdisecretary@mdi.ie and noting if attending in person at MDI office or electronically by Zoom facility. If attending by Zoom facility, details will be forwarded to those who register their attendance.

Please note only paid-up members who have paid their annual subscription on or by 30 April 2022 can vote at the AGM on any resolutions.

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Categories: EventsNews

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified