‘Accepting and Connecting with Muscular Dystrophy’ – new book by MDI member

October 29th, 2021

Our warm congratulations to MDI member, Siobhán Dunleavy, on the publication of her book, ‘Accepting and Connecting with Muscular Dystrophy’. We are really looking forward to reading it!

Siobhán, aged 29 years old, was diagnosed with muscular dystrophy at 21. In her book, she tells her personal story of how being diagnosed with a life-changing condition had a massive impact on her overall wellbeing, but just when she thought her life was falling apart, she realised it was actually falling into place. Although her diagnosis was life changing, she does not embrace it as life defining.

Siobhán speaks about exploring meditation, acceptance and mindfulness and how this allowed her to reconnect with herself and all of the abundances the world had to offer her. In this light-hearted, humorous and intimate tale, she highlights the challenges people with rare conditions and disabilities face every day.

The book is available to be bought from numerous stores around the country as well as from the Book Hub Publishing website at:

https://www.bookhubpublishing.com/product/accepting-and-connecting-with-muscular-dystrophy-isbn-978-1-7399578-2-7/

and from Amazon on paperback and ebook at:

https://www.amazon.co.uk/Accepting-Connecting-Muscular-Dystrophy-Spirituality/dp/1739957822/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1632414296&sr=8-1

You will find Siobhán on Facebook, Instagram and LinkedIn: @ Siobhan Dunleavy and her publishers @ Book Hub Publishing

https://www.facebook.com/BookHubPublishing/

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Categories: News

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified