40th Anniversary Book

40 Years of Support and Solidarity
– Anniversary Book of Muscular Dystrophy Ireland –

To order your copy, phone (01) 6236414, email info@mdi.ie or purchase online by clicking on the link below.

Special discounted price – Now Only €10 (plus free postage)

Book cover

Book cover

In 2012 Muscular Dystrophy Ireland celebrated 40 years since its foundation and to mark this momentous occasion we published a unique and powerful book that eloquently provides an account of the growth of Muscular Dystrophy Ireland’s community and also documents and celebrates the contributions made by individuals down through the years.

“Celebrating 40 Years of Support and Solidarity, the Anniversary Book of Muscular Dystrophy Ireland” was produced as part of MDI’s commemoration ceremonies.  It was written and compiled by Dublin journalist Catherine Reilly.  The book is based on interviews conducted between January and August 2012 with MDI founders, members, staff and supporters. The book conveys a sense of what is unique about MDI; it pays tribute to all the members who have helped build MDI and promote the identity as a professional and forward thinking organisation.

Muscular Dystrophy Ireland was founded in Galway in 1972 by a small group of families and this book acknowledges the foresight of our founders and also documents how much has been achieved since then. MDI would also like to remember all those who have been an integral part of growing, supporting and volunteering over the years.

For further information or to purchase a copy please contact MDI at (01) 6236414 or email info@mdi.ie.  The book is priced at €10 (free p/p) and can also be purchased by clicking on the link below.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified