The Patient Advocacy Service (PAS) provides free, independent and confidential information and advocacy support to people in Ireland who wish to make a formal complaint about their care in a Health Service Executive (HSE) funded public acute hospital, and in the aftermath of Patient Safety Incidents.
People looking for support can contact the PAS confidential helpline to speak to a trained advocate who will help them to get information on the HSE’s complaints investigation process, called ‘Your Service, Your Say’. The Service’s professionally trained independent advocates will support and empower the person making the complaint, with the aim of highlighting their views and concerns.
The Patient Advocacy Service was commissioned by the National Patient Safety Office in the Department of Health and is managed by the National Advocacy Service for People with Disabilities.
You can contact the Patient Advocacy Service helpline on 0818 293003. The helpline is open Monday to Friday from 10am until 4pm, including lunchtimes. You can also email firstname.lastname@example.org
HoldFirm is part of the ongoing COVID-19 public health advice programme from the HSE and the Department of Health.
The HoldFirm campaign first aired in May 2020, as the end of the first phase of restrictions came into sight. Our President’s words, from the poem ‘Take Care’ written in 1993, is the inspiration for the campaign to acknowledge and encourage the enormous effort being made by everyone in Ireland to stay safe and protect each other.
We would appreciate it if you would take a few minutes to complete our survey on MDI’s Adult Camp and Holiday Programme (accessible and supported breaks in Ireland organised by MDI for Adult Members with Muscular Dystrophy).
We will use the information you give us to help us plan and develop programmes in these areas that best meet the needs expressed by members as a whole.
This survey is for over 18’s only. If you have never participated in MDI’s Adult Camp and Holiday Programme, we’d still really welcome your views.
Changing Places Toilet Facilities are different from standard accessible toilets. They provide extra equipment like a hoist and an adult sized changing bench. In Ireland there are only 15 Changing Places Toilet Facilities compared to over 40 in Northern Ireland.
Changing Places Ireland campaign Steering Group includes people with disabilities, family members and national organisations – including Disability Federation of Ireland, Central Remedial Clinic, Enable Ireland, Inclusion Ireland, Spida Bifida Hyrocephalus Ireland and InterAcT.
The Disability Legal Information Clinic, run by the Centre for Disability Law and Policy in NUI Galway, will be completely online for the 2020/2021 academic year. The clinic provides free, accessible, confidential legal information on disability related legal issues and will now be available right across Ireland for disabled people, their families and supporters. The clinic is staffed by law student volunteers who are supervised by a member of the CDLP team and a qualified legal practitioner. In the past the clinic has dealt with issues in relation to housing, education, employment, discrimination and access to supports or services.
The Duchenne Patient Academy (World Duchenne Organization) will host a virtual training programme for patient advocates between 30 November and 6 December 2020. The majority of patient groups are members of the World Duchenne Organization and the Duchenne Patient Academy. Please note that individual patient advocates can also apply to join the academy. The deadline for registration for patient advocates is the 13 November. You can find out more by clicking on this link https://www.duchennedatafoundation.org/apply-now-for-duchenne-patient-academy-2020/
Action Duchenne held a virtual event recently for newly diagnosed families: Duchenne 101, an overview of the Standards of Care for Duchenne, Duchenne research, practical tips and benefits, and a Q and A session with the Action Duchenne team. You can watch it by following this link https://www.actionduchenne.org/newly-diagnosed-event-watch-recordings/.
Have your voice heard by taking part in a survey on the Cost of Disability
Last week a survey on the Cost of Disability was posted to a random sample of over 33,000 customers in receipt of relevant disability payments, as well as a survey specifically designed for the over 1,000 customers in receipt of Blind Pension. You can complete the survey online if you didn’t receive a postal copy or prefer to fill it in online.
As you may know, Indecon International Consultants has been working on a report on the Cost of Disability which was commissioned by the Department of Employment Affairs and Social Protection (DEASP). Disability Federation of Ireland has been highlighting the extra cost of disability for years and calling for a package of supports. The survey is thus a crucial opportunity to provide evidence to support these calls and for people with disabilities to document the many extra costs they live with on a daily basis to inform future supports and policy. So, it’s really important that as many people as possible complete it. We encourage you to take part in the survey!
All responses are completely anonymous. The deadline to complete the survey is Monday 16 November 2020. If you have any questions on this you can call the DEASP survey helpline on 01 704 3029 or email CODSurvey@welfare.ie. Alternatively, Indecon can be contacted directly at email@example.com or firstname.lastname@example.org.
This autumn, children aged 2-12 years are offered the flu vaccine free of charge. The vaccine is administered by the GP or pharmacist using a nasal spray. Children carry the flu virus in their system longer than adults do and they can spread the flu easily to others. If enough children are vaccinated against flu, fewer children and adults will need to see their doctor or need treatment in hospital because of flu. This is very important for our health services especially during the COVID-19 pandemic. You can find more information on the flu vaccine for children here and you can watch the new TV ad here.