Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

News

Face Coverings & Covid-19

June 30th, 2020

Face coverings help prevent people who don’t know they have the virus from spreading it to others. They should be worn anywhere it’s difficult to stay 2 m apart, like shops or public transport, or when visiting anyone who is more at risk.

This includes people aged over 70, or people who are medically vulnerable, including many people with disabilities. Wear a face covering to show your support for others, and to help in our fight against COVID-19.

See Department of Health and HSE information on face coverings:

 

HSE Advice – https://www2.hse.ie/conditions/coronavirus/face-masks-disposable-gloves.html

HSE Poster – https://www.hse.ie/eng/services/news/newsfeatures/covid19-updates/partner-resources/hse-face-covering-guidelines-poster-screen.pdf

HSE Radio Ad – https://soundcloud.com/user-992575667/face-coverings-june-2020

 

 


Communication of New AGM Date

June 22nd, 2020

Please find below, Communication of New AGM Date for Muscular Dystrophy Ireland:

 

Dear All

We would like to advise you that Muscular Dystrophy Ireland will now hold their Annual General Meeting on Saturday 12th September 2020.

The well-being of Members, Management and Staff is a primary concern for The Board of Muscular Dystrophy Ireland and taking into consideration the Health and Safety concerns in relation to holding physical meetings due to Covid 19 pandemic, The Board of Muscular Dystrophy Ireland have agreed that this Annual General Meeting will be held virtually using Zoom Conference.

We will, in the coming weeks, keep you updated as to the progress of preparing for this virtual Annual General Meeting and will publish links to the Notice of Annual General Meeting together with the relevant documents on the website when these become available.

Assistance and support will be available to members to enable them to join us for what is the organisation’s first virtual Annual General Meeting by Zoom Conference.

Keep safe and well,

 

Hazel Bridcut

Secretary
Muscular Dystrophy Ireland

 

 

Communication of New AGM Date


Sláintecare and HSE. Free online counselling

June 17th, 2020

In response to the mental health challenges posed by COVID 19, MyMind is now working with Sláintecare and the HSE to provide fully subsidised counselling, psychotherapy and psychological support for individuals over 18 years in all regions of Ireland. The main mental health issues include issues arising from unemployment, bereavement, social isolation/cocooning, illness, stress, depression, anxiety, addiction, domestic violence, etc. Appointments are readily available currently. You can find out if you are eligible by following this link https://mymind.org/covid-19-project.

COMIC BOOK WRITING COMPETITION

June 5th, 2020

MDI Youth Workers are running a comic book writing competition!

Age categories: Under 12, 12-17 years old and 18-25 years old.
Prize €50 voucher for each category.

Contact your Youth Worker for a comic book writing pack.
Send your creations to your Youth Worker to enter the competition.

If you don’t have a Youth Worker contact Amanda on 086-6066108 or yrwne@mdi.ie.

Closing date Friday 19th June.


Resources and Supports – Family Carers Ireland

June 2nd, 2020

Family Carers Ireland provide a range of services and supports to family carers and provide a national voice to represent fairness for carers.
They are offering a number of Resources and Supports for family carers, find out more from the links below:

 

Counselling
Free online and telephone counselling service for family carers –
https://familycarers.ie/help-and-advice/online-and-phone-counselling-service/

 

Wellbeing
Five ways to wellbeing online workshop for family carers –
https://familycarers.ie/five-ways-to-wellbeing-workshop/

 

Emergency Care Plan
You may find this emergency care plan booklet developed by Family Carers Ireland helpful for family carers to think about who could offer support and what that person would need to know in the event that the primary family carer is unable to provide care due to an emergency –
https://familycarers.ie/emergency-care-plan/


MDI CRAZY GLASSES COMPETITION

May 29th, 2020

Our Youth Workers have prepared a little summer fun for members with a Crazy Glasses Competition.

Download a template of the glasses from the link or pictures below. Create and colour your own designs and share a photo of you wearing them in the comments below, or send it to your youth worker.


If you don’t have a youth worker, contact Mary-Rose on 086 606 6104

There will be a €50 voucher prize for the winning entry.

Closing date is Friday June 12th

https://www.firstpalette.com/craft/paper-eyeglasses.html

 


X
Cavan, Monaghan, Louth Head Office - Dublin, Kildare, Wicklow Cork and Kerry Carlow, Kilkenny, Waterford, Wexford and Tipperary South Clare, Limerick and Tipperary North Laois, Longford, Offaly & Westmeath Galway, Mayo & Roscommon Donegal, Sligo, Leitrim

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified