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News

Update from HSE – online registration for COVID-19 vaccine

May 4th, 2021

From today, Tuesday 4 May, people aged between 50 and 59 can register for their COVID-19 vaccine online.

To avoid delays when we open registrations this week, we are asking people to register on different days depending on their age:

 Registration dates and age groups

  • Tuesday, 4 May, people aged 59 should register
  • Wednesday, 5 May – people aged 58 should register
  • Thursday, 6 May – people aged 57 should register
  • Friday, 7 May – people aged 56 should register
  • Saturday, 8 May – people aged 55 should register
  • Sunday, 9 May – people aged 54 should register
  • Monday, 10 May – people aged 53 should register
  • Tuesday, 11 May – people aged 52 should register
  • Wednesday,12 May – people aged 51 should register
  • Thursday, 13 May – people aged 50 should register

Register here for the vaccine:

 

Online registration – information for patients and service users

People in this age group who are registering online will need their Personal Public Service Number (PPSN), their Eircode, an email address or a mobile phone number.

 A friend or family member can help If someone is finding it difficult to go online and register or they can ring HSELive for support on 1850 241850 or 01 240 8787 from 8am to 8pm, 7 days.

Once registered the person will receive their vaccine appointment for the COVID-19 AstraZeneca vaccine.

 

Frontline healthcare worker vaccines

COVID-19 vaccines are still available to all frontline healthcare workers who have not yet been vaccinated, regardless of your age. Get information on how to get your vaccine here.

 



Children and COVID-9 vaccine

April 28th, 2021

Children and COVID-9 vaccine
The safety data isn’t there yet to guide COVID-19 vaccination in children as it has only been studied on adults. The HSE will continue to provide updates on the vaccine schedule over the coming weeks and months. MDI will continue to keep an eye out for any developments relating to children and will post any updates on our social media platforms and on this website.

HSE update – 23 April – COVID-19 vaccination programme

April 23rd, 2021

The vaccination programme continues to be rolled out nationwide, and as of 20th April 1,240,965 vaccines have been administered in Ireland.

Group 3 – aged 70 and over
Vaccination of people aged 70 and over continues by GPs, who are now largely vaccinating the group aged 70 to 74.  Our National Ambulance Service is also providing vaccines to people aged 70 and over who cannot leave home to be vaccinated.

Group 4 – aged 16-69 with very high risk conditions
Vaccinations, for people aged 16-69 with certain health conditions that put them at very high risk is underway. 104,082 vaccines were administered to people in Group 4 as of Tuesday, 20th April.

If you are aged 60-69 and have a health condition that puts you at very high risk and if you haven’t been given an appointment through your hospital or healthcare team yet, please register here for your vaccine. All people aged 60-69 in Group 4 are being vaccinated through HSE vaccination centres with the AstraZeneca COVID-19 vaccine.

If you are aged under 60 and have a health condition that puts you at very high risk, hospitals and healthcare teams continue to work to identify, contact and vaccinate people in this group and GPs are now starting to offer vaccine to people in this group, as they complete their patients aged 70 and over. It will take some time for GPs to identify and invite everyone. You don’t need to take any action, health services and GPs will contact their patients when it’s their turn to be vaccinated.

Group 5 and 6 – People aged 65-69, including those with high-risk conditions

We would like to remind everyone aged 60-69 to register for their COVID-19 vaccine through the HSE’s online registration system or on the phone with HSELive.

Everyone in this age group should including:

  • frontline healthcare workers who haven’t been given an appointment through their workplace
  • people aged 60-69 who have a health condition that puts them at very high risk (vaccine allocation Group 4) and who haven’t been given an appointment through their hospital or healthcare team

About 145,000 people aged 65-59 have already registered, and we’re now inviting people aged 60-64. To avoid delays, we are again asking people to register on different days depending on their age:

Registration dates and age groups

  • Friday, 23 April – people aged 64 should register
  • Saturday, 24 April – people aged 63 should register
  • Sunday, 25 April – people aged 62 should register
  • Monday, 26 April – people aged 61 should register
  • Tuesday, 27 April – people aged 60 should register

Register here for your vaccine

Online registration – information for patients and service users

People in this age group who are registering online will need:

  • their Personal Public Service Number (PPSN),
  • their Eircode,
  • an email address or a mobile phone number.

A friend or family member can help.

If someone is finding it difficult to go online and register or they can ring HSELive for support on 1850 24 1850 or 01 240 8787 from 8am to 8pm, 7 days.

If a person doesn’t have a PPSN they can register on the phone with HSElive. You don’t need a PPSN to be vaccinated.

Once registered the person will receive their vaccine appointment for the COVID-19 AstraZeneca vaccine.

If a person is deaf or hard of hearing, they can text HSELive on 086 1800 661 to register for their vaccination. You can find more information here.

 


HSE update on COVID-19 vaccination programme

April 20th, 2021

The vaccination programme continues to be rolled out nationwide, and as of 13th April 1,094,964 vaccines have been administered in Ireland. While we have largely completed vaccinations for the first 2 allocation groups, we are still working to vaccinate these groups:

Group 3
Vaccination of people aged 70 and over continues by GPs, who are now largely vaccinating the group aged 70 to 74.  Our National Ambulance Service is also providing vaccines to people aged 70 and over who cannot leave home to be vaccinated.

Group 4
Vaccinations, for people aged 16-69 with certain health conditions that put them at very high risk is underway. 76,331 vaccines were administered to people in Group 4 as of Tuesday, 13th April. Our hospital and healthcare teams continue to work to identify, contact and vaccinate people in Group 4. GPs will be vaccinating people in Group 4 who are not regularly in contact with hospitals.

Because of the recent changes in recommendations about the AstraZeneca vaccine, people aged under 60 in this group will now be offered an mRNA vaccine.

For now, people in this group don’t need to take any action. We understand that people are waiting to hear about the timing of their vaccine – your hospital, health service, or your GP will contact you when your vaccine is ready. This will continue over the next few weeks.

Group 5 and 6 – from Thursday the 15th April, people aged between 65 and 69 could register for their COVID-19 vaccine online. People were asked to register on different days depending on their age:

Registration dates and age groups

  • Friday, 16 April – people aged 68 should register
  • Saturday, 17 April – people aged 67 should register
  • Sunday, 18 April – people aged 66 should register
  • Monday, 19 April – people aged 65 should register

Register here for your vaccine

People in this age group who are registering online will need their Personal Public Service Number (PPSN), their Eircode, an email address or a mobile phone number.

A friend or family member can help. If someone is finding it difficult to go online and register or they can ring HSELive for support on 1850 24 1850 or 01 240 8787 from 8am to 8pm, 7 days.

Once registered, the person will receive their vaccine appointment for the AstraZeneca  vaccine at a HSE Vaccination Centre. Appointment will start from Thursday, 22nd April.

You can read more about the AstraZeneca Vaccine and its safety and effectiveness at this link –  https://www2.hse.ie/screening-and-vaccinations/covid-19-vaccine/astrazeneca/overview.html

You can read more information about these updates on this page dedicated to the vaccine rollout – https://www2.hse.ie/screening-and-vaccinations/covid-19-vaccine/rollout/rollout.html

You can find more information about how to register here if you are Deaf or hard or hearing.

 


Update on AstraZeneca vaccine and vaccination programme

April 13th, 2021

All vaccination appointments on 13 April cancelled

As you may be aware, the HSE announced that all AstraZeneca COVID-19 vaccination appointments planned for today, Tuesday, 13 April have been cancelled. If you had an appointment to get the AstraZeneca COVID-19 vaccine today, you will be contacted to rearrange your appointment.

The HSE is now assessing the impact of a decision by the National Immunisation Advisory Committee (NIAC) recommending that the AstraZeneca vaccine be limited to people over 60 years of age.

 

AstraZeneca vaccine to be limited to people over 60 years

The committee has advised that the vaccine be limited to use in people over 60 years. The advice is based on an assessment of the risk of rare blood clotting side effects against the benefits of the vaccine, based on age.

 

Receiving your second dose of AstraZeneca vaccine

NIAC have said that the AstraZeneca vaccine remains a very effective vaccine. Most people under 60, who have already received their first dose of the AstraZeneca vaccine, will receive their second dose as planned.

  • NIAC advises, however, that a second dose should not be given to anyone who developed unusual blood clots with low platelets after the first dose.
  • Those aged 60 and older should receive their second dose 12 weeks after their first jab as scheduled.
  • People aged under 60 with a very high-risk or high-risk medical condition should also receive their second dose 12 weeks after their first jab as scheduled.
  • People under 60 without a very high-risk or high-risk condition will have the interval between their doses extended to 16 weeks to allow for further assessment of the benefits and risks of the vaccine, as more evidence becomes available.

 

Further roll-out of AstraZeneca vaccine for people aged 60-90 years

Most of the future AstraZeneca vaccines will be used just for people aged 60 to 90 years.

 

Full NIAC statement

You can read the statement from NIAC on the following link here.

MDI will continue to monitor official websites and keep you updated on any developments.


Self Care Course for Carers

April 13th, 2021

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION

8 session course for Carers & Parents.

Beginning Friday 30th April and running once a month from April to December
From 6:30pm-8pm on Zoom

To register for this course, contact your local family support worker or
Ewa at respite@mdi.ie/0866066103 by Friday the 23rd of April.

For more details see: MDI-Self-CareCourse-Carers2


Self Care Course for Members

April 13th, 2021

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION

8 week course for members with muscular dystrophy.

Beginning Wednesday 28th of April and running for 8 weeks
from
11:30am-1:30pm on Zoom

To register for this course, contact your local family support worker or Ewa at respite@mdi.ie / 0866066103 by Friday the 23rd of April.

For more details see: MDI-Self-CareCourse-Members2


DFI Housing Survey

April 8th, 2021

DFI Survey on Housing for People with Disabilities in Galway, Mayo and Roscommon
All Local Authorities are responsible for reviewing and renewing their Strategic Plans for Housing People with Disabilities. This process has begun in all Local Authority areas. The Disability Federation of Ireland are seeking feedback from people with disabilities and / or their family carers in relation to their housing needs and experiences of accessing housing and/or housing adaptation grants through Local Authorities in the West. This data is anonymous and will be used to feedback into the Strategic Plans for Housing People with Disabilities within Local Authorities in the West. You can take part in the survey by following this link: https://forms.office.com/r/WVrwKzG65Q


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Cavan, Monaghan, Louth Head Office - Dublin, Kildare, Wicklow Cork and Kerry Carlow, Kilkenny, Waterford, Wexford and Tipperary South Clare, Limerick and Tipperary North Laois, Longford, Offaly & Westmeath Galway, Mayo & Roscommon Donegal, Sligo, Leitrim

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified