Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

MDI Membership

Muscular Dystrophy Ireland welcomes new members and returning members. MDI membership provides you with many services including:

  • Support
    • Family Support Programme
    • Counselling and Bereavement Services
    • Personal Assistance Service
    • Youth Service Programme
  • Information
  • Advocacy
  • Transport and Equipment
  • Home from Home Apartment.

We also support research on muscular dystrophy/neuromuscular conditions in Ireland.

Please note:

The MDI Constitution was approved by members at the AGM on the 12 September 2020. This Constitution outlines the eligibility and categories of member as follows:

  • People with muscular dystrophy aged 18 years and older
  • Family members of people with muscular dystrophy
  • Volunteers aged 18 years and over who work with people with muscular dystrophy.

The Board determine the annual membership fee and notify members of same and date of payment each year. The Board have agreed an annual membership fee of €15 for all member categories and the closing date for ‘full’ membership entitlements for the current year as 30 April 2022. Annual membership runs from January to December.

As in line with the MDI Constitution, it is important to note that in order to have a vote at the Annual General Meeting (or any Extraordinary General Meetings) or to serve on the MDI Board, you must be a paid-up member on or before 30 April 2022.

Membership subscription can still be received after the above date for the current year. However, the voting rights etc (referred to above) cannot be exercised.  

How do I join?

Online

You can become a new member or renew your membership by clicking on the button below:

Fill in your details and pay online.

By post

Drop an email to mdiproject@mdi.ie or phone Ewa on 086 604 3365 and ask for a membership application form to be emailed to you or popped in the post. It’s that easy!

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified