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Important information and Covid 19 guidance as we enter Level 5 restrictions

October 22nd, 2020

Dear Members,
We hope this finds you well.
We are emailing you to keep you up-to-date on our services and important Covid 19 guidance and information from the HSE as the country goes onto Level 5 restrictions for the next six weeks. If you have any questions or support needs, please do get in touch with your Family Support Worker or MDI’s Information Officer, Maeve Healy, on mdiinfo@mdi.ie. Stay safe everyone. We are here for you!
MDI Services
We wish to let you know that you can still book MDI’s Home-from-Home Apartment for hospital appointments. You can make a booking for the Home-from-Home Apartment by emailing Owen on owen.collumb@mdi.ie.
Our transport service can transfer members who arrive in Dublin from all over the country to attend appointments. Our driver can collect members from train stations, Busáras, as well as from your overnight stays at the MDI Home-from-Home Apartment and other accommodation. You can arrange transport by contacting Darren on darren@mdi.ie.
MDI Support Services – Family Support Service, Youth Support Service, Personal Assistant Service and Counselling Service – are all still running.  If you would like more information, please contact your Family Support Worker.
HSE Guidance and Information
The HSE has launched its Covid Bubbles ad campaign to promote social distancing particularly among young people. We will be sharing it on our social media platforms as well as on our website, asking members to like and share. You can view the ad on the following link https://www.youtube.com/watch?v=y78DhKRxjQs&feature=youtu.be.

Public Health Information

As always, for the most up to date information and advice on Coronavirus, please go to: https://www2.hse.ie/coronavirus/ and https://www.hpsc.ie/a-z/respiratory/coronavirus/novelcoronavirus/. Clinical and professional guidance relating to COVID-19 is available on www.hpsc.ie where you’ll find up to date guidance for healthcare settings and non-clinical settings.

COVID-19 Guidance for Older People and Others at Risk of Severe Disease on Reducing Risk of COVID-19 Infection

The guide, developed in consultation with Alone, SAGE and the National Care Alliance, is for people who live in the community and for those who help them if and when they need help. You can download the guide here.

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals including Children’s Hospitals, Rehabilitation Services and Other Healthcare Settings Providing a Similar Intensity of Care

This guidance is for visiting inpatients in acute services. You can download the guide here.

Flu Vaccine for Children aged 2-12 years

This autumn, children aged 2-12 years are offered the flu vaccine free of charge. The vaccine is administered by the GP or pharmacist using a nasal spray. Children carry the flu virus in their system longer than adults do and they can spread the flu easily to others. If enough children are vaccinated against flu, fewer children and adults will need to see their doctor or n​eed treatment in hospital because of flu. This is very important for our health services especially during the COVID-19 pandemic. You can find more information on the flu vaccine for children here and you can watch the new TV ad here.

Day Services for Adults with Disabilities

Day services for adults with disabilities are viewed as an essential service and will be maintained during the Level 5 restrictions.

COVID-19 Guidance on Visitations to Long Term Residential Care Facilities

This guidance is for visiting people who live in residential care facilities such as nursing homes, HSE long term facilities etc. You can download the guide here.

With our best wishes
All at MDI
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Categories: Information

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified