Guidance for children with health conditions

August 27th, 2020

We are aware of many members seeking advice on going back to school. Here is the Government’s Back to School Guidance for Children with health conditions. You can also find this by scrolling towards the end of https://www.gov.ie/en/publication/40e9c-protecting-your-child-from-coronavirus/  For lots more information for students and their families returning to school, including a section on wellbeing resources, follow this link https://www.gov.ie/en/publication/a04fc-advice-for-students-and-their-families/

Children with health conditions
Children with underlying health conditions may be vulnerable to any infection. But it appears the risk of severe illness from coronavirus is low, even if your child has:
  • an underlying health condition
  • special healthcare needs.
If your child has a health condition they and everyone in the family should still:
  • be extra careful in watching out for symptoms
  • strictly follow the advice on good hygiene and hand washing.
Your child should try and keep up their normal activities and attend school. This is good for their overall wellbeing.
If your child has recently had a transplant or has severe immunodeficiency, talk with their specialist. They will advise if your child needs to take any extra precautions.

If you do have concerns about your child’s health condition, ask their specialist team for advice.

A small number of children with coronavirus have developed an inflammatory syndrome called paediatric inflammatory multisystem syndrome (PIMS). This condition is rare. It mainly occurs in children who do not have a health condition. Read more about PIMS. Read more about PIMS here.

If your child has a health condition and gets symptoms of coronavirus
If your child has a health condition and gets symptoms of coronavirus:
  • isolate your child – this means keep them at home and completely avoid contact with other people. This includes other people in your household – Read advice on self-isolation
  • phone your GP and specialist – they will advise you if your child needs a coronavirus test.
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Categories: Information

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified