Coronavirus COVID-19 Updates from MDI

COVID-19 booster (4th) dose for people who are immunocompromised
(have a weak immune system)
– 8th February


Information for people getting a booster dose of COVID-19 – 11th October

Children and COVID-9 vaccine – 28th April

HSE – Covid-19 Vaccination Programme – Update – 23rd April

Updates on AstraZeneca Vaccine and Vaccination Programme – 13th April

Update from HSE on Covid-19 vaccination programme – 5th March

Information on vaccine roll-out – 1st March

Update on vaccine rollout for people with disabilities – 23 February

HoldFirm Campaign – 23rd November

Keeping Well This Winter – 23rd November

Flu Vaccine for Children aged 2-12 years – 27th October

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals – 27th October

COVID-19 Guidance for Older People and Others at Risk  – 27th October

Important information and Covid 19 guidance as we enter Level 5 restrictions – 22th October

Public Health Information – 22th October

Covid Bubbles campaign advert from the HSE – 22th October

Advice for Neurodisability Patients – CHI at Crumlin – 06th October

Guidance for children with health conditions – 27th August

HSE COVID Tracker App – 07th July

Face Coverings & Covid-19 – 30th June

Covid-19 Information Updates – HPSC & HSE – 30th June

Sláintecare and HSE. Free online counselling – 17th June

People at Higher Risk from Coronavirus  – Updated – 8th June

Resources & Supports – Family Carers Ireland – 02nd June

Dr Frank Conaty – No going back to reduced rights for People with Disabilities – 29th May

Most Up to Date Info from the HSE on COVID-19 – 28th May

Information about CRC’s Services during COVID-19 – 25th May

Children’s Health Ireland – Crumlin & Tallaght – Update – 20th May

Translated resources to help share the messaging about COVID-19 in various languages

Results of MDI’s Membership Support Survey – Covid 19 Crisis – 14th May

For the most Up to Date COVID-19 Resources

The Government’s roadmap for reopening society and business

HoldFirm – the HSE’s New Campaign – 11th May

AMRIC Education Programme – 11th May

Launch of the COVID-19 Disability Rights Monitor & Survey – 7th May

A message from Dr Cathal Morgan, Head of Disability Operations, HSE
– 29th April

Covid-19 Frequently Asked Questions for people with disabilities and family carers – 29th April

How to stay connected using Communication Apps – 29th April

Neurological Alliance of Ireland Survey – 25th April

MDI Member’s Support Survey, COVID-19 Crisis – 17th April

Update on MDI Correspondence via Post – 6th April

Update on Beaumont Hospital Respiratory Clinic on Friday 3rd April – 1st April

FAQs about Coronavirus and Neuromuscular Conditions prepared by Adult Neurology Services – 1st April

Update on MDI Annual General Meeting 2020 – 30th March

Update from the Neurology Clinical Programme: Access to Neurology Services and Covid19 – 20th March

MDI Update on Beaumont Hospital Neurology Clinics for April – 20th March

MDI Update on Support and Advocacy – 20th March

Care Alliance Ireland Family Carer Support Group – 20th March

MDI Update on Respiratory Clinic in Beaumont Hospital – 18th March

Know the signs of Covid-19 Coronavirus – 16th March

Helping Children and Teenagers to Understand – 16th March

MDI Update on Adult Neurology Clinic in Beaumont Hospital – 16th March

Coronavirus – How we might be affected emotionally – 13th March

Coronavirus Update regarding MDI activities – 12th March

At-risk groups and Coronavirus (COVID-19) – 11th March 2020

MDI Update on March Clinics at Beaumont Hospital – 10th March 2020

MDI Update Re:  Covid-19 (Coronavirus) Health Information – 3rd March 2020


1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified