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Coronavirus COVID-19 Updates from MDI

Advice for Neurodisability Patients – CHI at Crumlin – 06th October

Guidance for children with health conditions – 27th August

HSE COVID Tracker App – 07th July

Face Coverings & Covid-19 – 30th June

Covid-19 Information Updates – HPSC & HSE – 30th June

Sláintecare and HSE. Free online counselling – 17th June

People at Higher Risk from Coronavirus  – Updated – 8th June

Resources & Supports – Family Carers Ireland – 02nd June

Dr Frank Conaty – No going back to reduced rights for People with Disabilities – 29th May

Most Up to Date Info from the HSE on COVID-19 – 28th May

Information about CRC’s Services during COVID-19 – 25th May

Children’s Health Ireland – Crumlin & Tallaght – Update – 20th May

Translated resources to help share the messaging about COVID-19 in various languages

Results of MDI’s Membership Support Survey – Covid 19 Crisis – 14th May

For the most Up to Date COVID-19 Resources

The Government’s roadmap for reopening society and business

HoldFirm – the HSE’s New Campaign – 11th May

AMRIC Education Programme – 11th May

Launch of the COVID-19 Disability Rights Monitor & Survey – 7th May


A message from Dr Cathal Morgan, Head of Disability Operations, HSE
– 29th April

Covid-19 Frequently Asked Questions for people with disabilities and family carers – 29th April

How to stay connected using Communication Apps – 29th April

Neurological Alliance of Ireland Survey – 25th April

MDI Member’s Support Survey, COVID-19 Crisis – 17th April

Update on MDI Correspondence via Post – 6th April

Update on Beaumont Hospital Respiratory Clinic on Friday 3rd April – 1st April

FAQs about Coronavirus and Neuromuscular Conditions prepared by Adult Neurology Services – 1st April

Update on MDI Annual General Meeting 2020 – 30th March

Update from the Neurology Clinical Programme: Access to Neurology Services and Covid19 – 20th March

MDI Update on Beaumont Hospital Neurology Clinics for April – 20th March

MDI Update on Support and Advocacy – 20th March

Care Alliance Ireland Family Carer Support Group – 20th March

MDI Update on Respiratory Clinic in Beaumont Hospital – 18th March

Know the signs of Covid-19 Coronavirus – 16th March

Helping Children and Teenagers to Understand – 16th March

MDI Update on Adult Neurology Clinic in Beaumont Hospital – 16th March

Coronavirus – How we might be affected emotionally – 13th March

Coronavirus Update regarding MDI activities – 12th March

At-risk groups and Coronavirus (COVID-19) – 11th March 2020

MDI Update on March Clinics at Beaumont Hospital – 10th March 2020

MDI Update Re:  Covid-19 (Coronavirus) Health Information – 3rd March 2020

 

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified