Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Governance Documents

  1. AGM 2021 Notice to Members
  2. AGM Minutes 12 Sept 2020
  3. AGM 2020 Notice to Members
  4. AGM Minutes 22nd June 2019 
  5. Bikefest Volunteer Policy
  6. Bord Failte Certificate
  7. Board Skills Audit Template
  8. CEO Induction Pack Index
  9. CEO Job Specification Role
  10. Changes to Trustees – A Holland
  11. Changes to Trustees – AGM
  12. Changes to Trustees – P Cassidy
  13. Charity Detail – Charities Regulator
  14. Code of Conduct – Volunteers
  15. Confidentiality Policy
  16. Constitution Approved 12092020
  17. CRA – general-note-on-other-legal-and-regulatory-requirements
  18. CRA -guidance-for-fundraising
  19. CRA Guidance-note-on-succession-planning
  20. CRA Guidance-on-charity-communications
  21. CRA risk-management-for-charities
  22. CRA What is a Charity
  23. CRO Registration
  24. Declaration of Interests Form
  25. Email Signature MDI-2021 (5)
  26. Employee Acknowledgement Staff Handbook
  27. Final KPI Input Data Sheet 2020 Q4
  28. Finance Committee TOR
  29. Financial Policy and Procedure Index
  30. Financial Policy and Procedures
  31. Fleet Renewal 2020 (1)
  32. General Insurance Proposal Renewal Form
  33. HSE-consolidated-pay-scales-October-2020
  34. Insurance Cover 2020
  35. Job spec – Respite Services Administrator
  36. Job Spec FSW TEMPLATE
  37. Job Spec Youth Worker Role
  38. Membership Form
  39. MDI – Application Form Board
  40. MDI Board of Director Code of Conduct
  41. MDI Child Safeguarding Statement 10-2021
  42. MDI Children First Policy and Code of Practice for the Protection of Children and Adults V8_UPDATED
  43. MDI Code of Practice for working with the Healthcare Industry
  44. MDI Communications Policy
  45. MDI Conflict of Interest Guidelines
  46. MDI Cookie Policy
  47. MDI Covid 19 Response Plan
  48. MDI Covid 19 Return to Work docs
  49. MDI Donor & Fundraising Charter
  50. MDI Financial Sign Off Checklist
  51. MDI Fundraising Code of Practice
  52. MDI Fundraising Guidelines
  53. MDI Gift & Hospitality policy
  54. MDI Induction – Board Members
  55. MDI Members Complaints Policy V8 Sept 2021
  56. MDI Members Feedback Policy V4 June 2021
  57. MDI Organisational Chart 2021
  58. MDI Privacy Statement/Notice 011121
  59. MDI Register of Interests Form
  60. MDI Risk Assessment Form 2 Health Care Worker (1)
  61. MDI Risk-register-template
  62. MDI Role of the Board
  63. MDI Role of the Chairperson
  64. MDI Role of the Company Secretary
  65. MDI Role of the Executive Committee
  66. MDI Role of the Treasurer
  67. MDI Role of the Vice Chairperson
  68. MDI ROS Registrations
  69. MDI Safeguarding Policy Statement 2021
  70. MDI Safeguarding Vulnerable Adults Policy 2021 updated
  71. MDI Schedule of Matters for Board
  72. MDI Staff Handbook May 2014 Version 6.0 (1)
  73. MDI Staff Support and Supervision Agreement
  74. MDI Support Supervision Policy Final – Copy
  75. MDI The Charities Governance Code – The Six Principles of Good Governance
  76. MDI Volunteer Recruitment Policy
  77. Microsoft Word – MDI Volunteer Handbook 2014.docm
  78. Motor Premiums 2020
  79. Muscular Dystrophy Ireland Staff Induction (1)
  80. Notes re Appraisal Meeting
  81. Part 05-01-06 – Tax treatment of the reimbursement of Expenses of Travel and Subsistence to Office Holders and Employees
  82. Peninsula 2020
  83. Proposal to MDI October 2019 purplegrass
  84. Research Terms of Reference
  85. Sample MDI Board meeting September 2020
  86. SLA Governance Documentation Checklist
  87. Staff Appraisal Prep Form
  88. Strategic Plan 2020- 2022
  89. Support and Supervision Recording Template 2019 – Copy
  90. Updated Headed Notepaper Feb 2021
  91. Vols 2020 Template
  92. Work Plan Template

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified