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MDI Virtual Youth Club

April 26th, 2020

The MDI Youth Service is all about giving our young members the opportunity to get together, form friendships, share experiences, have fun and build confidence and self-esteem. It is primarily about meeting up with our members, face to face, giving our young members a social outlet however the Youth Worker team have now been exploring a number of new alternative fun ways to engage and keep our young members connected with each other.
One of which is the set up a new MDI VIRTUAL YOUTH CLUB using Zoom, a safe and secure online platform to bring members and Youth Workers together. Zoom is a free downloadable app downloaded from the App Store & Play Store and is available for use on phones, tablets and laptops. The app will allow Youth Workers to connect with members in real-time and have fun with challenges, activities and prizes.
Members and their families will be able to communicate with the MDI Youth Team directly, as well as chatting with other MDI members. This will be a safe place, and only invited members will be able to participate in the sessions.
If you would like to be involved in this, please contact your local MDI Youth Worker, if you are unsure who this is or you do not have a Youth Worker at present please contact mdiinfo@mdi.ie or phone 086 0293789
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Categories: Events

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified