LIMB GIRDLE MUSCULAR DYSTROPHY (LGMD) COMMUNITY GATHERING.

September 1st, 2023

Muscular Dystrophy Ireland (MDI) is pleased to invite you to our LIMB GIRDLE MUSCULAR DYSTROPHY (LGMD) COMMUNITY GATHERING.

📆: Wed, 4 October 2023

⏱️: 11:30 – 15:00

🔗: https://LGMD_community_gathering_MDI.eventbrite.ie

↘️Opportunity for people living with LGMD and their families to get together as a community and learn together.

↘️Hybrid event – you can attend online or in person at Muscular Dystrophy Ireland, 75 Lucan Road, Chapelizod, D20 DR77

↘️3 guest speakers: Marianne Dwyer will speak about ‘The importance of having a voice and feeling listened to; MDI member, Nicola Whelan, will speak about ‘living with LGMD’; and Pat Moeschen (USA) will speak about ‘Not living to wait, and not waiting to live, my journey with muscular dystrophy’.

↘️Time for questions and discussion.

↘️This event is free.

↘️ Lunch provided

↘️Find out more and register for the event here https://LGMD_community_gathering_MDI.eventbrite.ie

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Categories: Events

Muscular Dystrophy Ireland CLG
75 Lucan Road, Chapelizod, Dublin D20 DR77
Telephone: 1800 245 300

Registered Charity Number: 20012038
CHY Charity Number: 6849
Company Number: 60460
Country of registration: Ireland

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified