Charcot-Marie-Tooth awareness event

March 16th, 2023


Ulysses Neuroscience Ltd. is an Irish organisation that provides clinical and preclinical research services to pharmaceutical companies to accelerate their drug discovery programmes in neuropsychiatric and rare neurological conditions. Their company has three core values which directly drive their research: Patient-Centricity, Translational Research and Social Responsibility. 

Following some promising results in their first observational biomarker study with a small number of people living with Charcot-Marie-Tooth (CMT) and hereditary neuropathy with pressure palsies (HNPP) in Ireland, they are conducting a follow up study to replicate their findings and increase the number of people involved. Through their research of novel biomarkers, they hope to advance research towards a therapeutic target to improve the lives of people living with CMT. 

The community of people living with the condition is at the core of the research that they do, so they will be hosting an awareness event for CMT this spring to bring together the Irish CMT community with researchers and clinicians, to share what is most important to people living with the condition and work toward a shared goal of bettering therapeutics for peripheral neuropathies. They also want to invite the community to get involved in their research at Ulysses, and this will be a great opportunity to meet the researcher and give them feedback on their initiatives. 

If this sounds like something you would like to get involved in or to know more about, they would love to hear from you! Simply fill out this survey or contact their Patient Insight Manager, or reach out to them on social media (LinkedIn and Facebook: Ulysses Neuroscience Limited, Instagram: @ulysses_neuroscience, Twitter: @UlyssesNeuro). 

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Categories: Events

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
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9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

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