We are inviting MDI members to let us know what you think of the Draft Initial State Report on the Convention on the Rights of Persons with Disabilities. As a member organisation, MDI will feed into Disability Federation of Ireland’s (DFI) submission on the Draft Report. We want to include your views and experiences. In […]
Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.
Minister for Health to ask NIAC to consider including family carers in vaccine groups being reviewed
The Minister for Health is to ask the National Immunisation Advisory Committee (NIAC) to consider whether family carers could be included in one of the vaccine groups currently being reviewed. For more information, click here.
Musical Bingo
MDI presents Musical Bingo via Zoom for young members (under 18’s). Friday 14th May at 6pm. Register by Friday 7th May by contacting your local Support Worker or by calling Sinead on: 086 6066104.
Zoom Family Quiz
MDI Zoom Family Quiz for young members (under 18’s) and their families. Saturday 20th February. To register or for more details contact your local Youth Worker or phone Amanda on: 086 6066108.
Calling on MDI members to strengthen the voice of the muscular dystrophy community in seeking vaccine prioritisation!
We are encouraging members to contact your TDs to call for the prioritisation of people with muscular dystrophy/neuromuscular conditions who are very high risk / extremely medically vulnerable and high risk from Covid-19 for vaccination, as well as their unpaid/informal carers. You can find out more by clicking here here.
MDI Members Upcoming Events
MDI are pleased to announce a number of upcoming events that maybe of interest to our members and their families over the next few weeks: MDI Adult Members Events: Murder Mystery Tuesday 2nd of February at 6:30pm via zoom hosted by our Youth Work Team and Celebs-Entertainment. To RSVP contact Sinead on 0863899285 or your […]
IMPORTANT UPDATE FOR DR. O’BRIEN CLINIC AT BEAUMONT HOSPITAL
Beaumont Hospital has asked us to let members know that, unfortunately, the Muscular Dystrophy Clinic scheduled for this Friday, 18 December, has been cancelled. Dr O’Brien’s secretary will also send out text messages to people who have appointments.
Reminder – Patient Education Programme
REMINDER: The call for applications to the 2021 IPPOSI Patient Education Programme in Health Innovation is closing at midnight on Sunday, December 13th, 2020. All of the information you need to complete the application, including a Guide for Applicants, a link to the online application form, as well as an instructional webinar are available […]
Muscular Dystrophy Ireland Survey on Adult Camp and Holiday Programme
We would appreciate it if you would take a few minutes to complete our survey on MDI’s Adult Camp and Holiday Programme (accessible and supported breaks in Ireland organised by MDI for Adult Members with Muscular Dystrophy). We will use the information you give us to help us plan and develop programmes in these areas […]
Apply now for Duchenne Patient Academy 2020
Apply now for Duchenne Patient Academy 2020 The Duchenne Patient Academy (World Duchenne Organization) will host a virtual training programme for patient advocates between 30 November and 6 December 2020. The majority of patient groups are members of the World Duchenne Organization and the Duchenne Patient Academy. Please note that individual patient advocates can also apply to […]
