MDI: Coping with your child’s diagnosis of muscular dystrophy
Muscular Dystrophy Ireland recently made a short video with helpful information on coping with your child’s diagnosis of muscular dystrophy, coming to terms with and talking to your child about the diagnosis, and explaining how MDI is here for you. We hear from a parent, a developmental-behavioural paediatrician, a person living with muscular dystrophy and […]
Annual General Meeting 2023
Dear Member, I am writing to inform you that Muscular Dystrophy of Ireland Company Limited by Guarantee (MDI) will hold its 2023 Annual General Meeting (“AGM”) on Saturday, 27th May 2023 at 12.30 pm at the registered office of the Company at 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 and, for members using Zoom facility, […]
Call out to paid up members up to 31st March 2023
We need your help! To run a successful charity, we need member participation on our board. We simply could not succeed without you. We need you to join us and provide diverse skills that will help us deliver our mission and values. Why: our objective is to help our members, to provide information, support and services, to promote independent living […]
An update on our peer camp
Dear Members, We have long held our Peer Summer Camp in high regard. Each year we strive for a shared experience, fostering independence, social skills, confidence, and fun for everyone who attends. As a charity, the standards for services are provided to our sector from the Health Information and Quality Authority (HIQA). In recent times […]
Standards of care
Recommended standards of care bring together research and recommendations from clinical experts in the field with the aim to improve clinical care for individuals with specific conditions. Below is a list of neuromuscular conditions for which international standards of care have been developed. These publications can be used by doctors, people living with the condition, […]
The AHEAD2023 Conference is open for registration
The Biggest Conference for Students and Learners with Disabilities – Power of Disability – January 25th & 26th Online AHEAD and the Union of Students in Ireland are happy to present the Power of Disability Conference 2022, taking place January 25th and 26th. This two day event will include discussions, presentations and feedback sessions encouraging students with disabilities to be leaders on their own […]
Neurological Alliance of Ireland Pre Budget event: Will your local TDs be there?
On Tuesday 20 September the Neurological Alliance of Ireland will host a pre-budget event: providing its member organisations with the opportunity to meet with TDs and highlight ongoing advocacy campaigns. MDI is a member of the NAI. You can help to make sure your local TDs attend by using the simple tool on the NAI […]
Call out to paid up members
We need your help! To run a successful charity, we need member participation on our board. We simply could not succeed without you. We need you to join us and provide diverse skills that will help us deliver our mission and values. Why: our objective is to help our members, to provide information, support and services, to promote independent living […]
Survey on pregnancy, family planning and rare conditions
Would you like to take part in a survey on challenges and good practice related to pregnancy, family planning and rare conditions? The European Reference Networks’ (ERN) Study Group on Pregnancy and Family Planning in rare, low prevalence and complex conditions has published a survey that aims to collect evidence on the management of pregnancy […]
