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Disability Federation of Ireland baffled that the Budget is not meeting its minimum investment of €350m in disability services

The Government has estimated €350-€600 million would be needed from Budget 2022 to address unmet need in disability services[1]. Today’s Budget shows they are ignoring their own advice, which is baffling to the Disability Federation of Ireland, DFI. “As it stands, disability services funding is only slightly increased beyond last year’s Budget level. The Government’s […]

Book a place today on Helium’s art-based programme for teenagers living with long-term health conditions

Don’t miss today’s deadline for booking free remote art-based programme for teenagers living with long-term health conditions. Helium Arts will use on and offline activities, together we will explore the theme of ‘Fiction Through Image’ through a range of visual arts activities including; photography, collage, illustration, mapping, color, bricolage, and animation. For teens with long-term […]

Nationwide Campaign for More Neurology Nurses: First Stop Limerick

Join the Neurological Alliance of Ireland at their online event from 10am on Monday 4th October as they launch their #PatientsDeserveBetter campaign for more specialist nurses across neurology services. Nurse specialists play a crucial role in supporting people with neurological conditions. Increasing the number of neurology nurses will ensure that people with neurological conditions have improved […]

Taxi Accessibility Survey

The National Transport Authority aims to improve Small Public Service Vehicle (SPSV – Taxi, Hackney and limousine) services for all, but particularly for people with disabilities who are using or might use this door-to-door transport service. They are currently seeking your experiences, opinions and advice on the demand for and accessibility levels of taxi, hackney and limousine […]

Musical Bingo

MDI presents Musical Bingo via Zoom for young members (under 18’s). Friday 14th May at 6pm.  Register by Friday 7th May by contacting your local Support Worker or by calling Sinead on: 086 6066104.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified