Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Musical Bingo

MDI presents Musical Bingo via Zoom for adult members (over 18’s). Wednesday 24th February at 6.30pm.  Register by Monday 15th February by contacting your local Support Worker or by calling Sinead on: 086 3899285.  

Zoom Family Quiz

MDI Zoom Family Quiz for young members (under 18’s) and their families. Saturday 20th February. To register or for more details contact your local Youth Worker or phone Amanda on: 086 6066108.

MDI Members Upcoming Events

MDI are pleased to announce a number of upcoming events that maybe of interest to our members and their families over the next few weeks: MDI Adult Members Events: Murder Mystery Tuesday 2nd of February at 6:30pm via zoom hosted by our Youth Work Team and Celebs-Entertainment. To RSVP contact Sinead on 0863899285 or your […]

IMPORTANT UPDATE FOR DR. O’BRIEN CLINIC AT BEAUMONT HOSPITAL

Beaumont Hospital has asked us to let members know that, unfortunately, the Muscular Dystrophy Clinic scheduled for this Friday, 18 December, has been cancelled. Dr O’Brien’s secretary will also send out text messages to people who have appointments.

Reminder – Patient Education Programme

REMINDER:   The call for applications to the 2021 IPPOSI Patient Education Programme in Health Innovation is closing at midnight on Sunday, December 13th, 2020. All of the information you need to complete the application, including a Guide for Applicants, a link to the online application form, as well as an instructional webinar are available […]

Muscular Dystrophy Ireland Survey on Adult Camp and Holiday Programme

We would appreciate it if you would take a few minutes to complete our survey on MDI’s Adult Camp and Holiday Programme (accessible and supported breaks in Ireland organised by MDI for Adult Members with Muscular Dystrophy). We will use the information you give us to help us plan and develop programmes in these areas […]

Apply now for Duchenne Patient Academy 2020

Apply now for Duchenne Patient Academy 2020 The Duchenne Patient Academy (World Duchenne Organization) will host a virtual training programme for patient advocates between 30 November and 6 December 2020. The majority of patient groups are members of the World Duchenne Organization and the Duchenne Patient Academy. Please note that individual patient advocates can also apply to […]

Mindful Connections Workshop – 10th November 2020

We are please to announce an new online Mindful Connections Workshop aimed at helping you to reflect on your overall wellbeing and build on your self-compassion and other skills to remain happy and motivated. The Workshop will begin on Tuesday 10th November from 12PM-1PM, and will be run through ZOOM. due to demand we have […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified