Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

HSE Service Plan 2021 published

The HSE National Service Plan 2021 has been published this week after a long delay. The Plan decides how the HSE’s money will be spent in 2021. There has been an eight per cent increase in funding for Disability, that’s €100 million extra in the HSE Service Plan 2021. You can watch a short video […]

Update on vaccine rollout strategy

MDI welcomes the government’s decision to move up people with certain conditions on the vaccine rollout strategy. Your efforts to contact TDs and lobbying carried out by MDI and other patient groups have had an impact. For further details, click on this link https://www.gov.ie/en/publication/39038-provisional-vaccine-allocation-groups/

‘Benefits and Entitlements – free workshops for MDI members 1 March

Places are still available for MDI’s two free Zoom workshops on 1 March – Benefits and Entitlements for People with Disabilities – facilitated by Citizens Information. You can register on Eventbrite – see links in the flyer below – or by contacting your Family Support Worker or Ewa at respite@mdi.ie. Click here here for more […]

MDI urges Government to prioritise people with muscular dystrophy who are ‘very high risk / extremely medically vulnerable’ and ‘high risk’ from Covid-19 for vaccination, as well as their unpaid/informal carers

MDI has written to key Government ministers and those in opposition, appealing for the prioritisation of people with muscular dystrophy / neuromuscular conditions who are ‘very high risk / extremely medically vulnerable’ and ‘high risk’ from Covid-19 for vaccination, as well as their unpaid / informal carers. You can view our letter to Minister for […]

2021 Citizens’ Jury Now Open for Applications!

2021 Citizens’ Jury Now Open for Applications! Dear Members, On Jan 7th, 2021, IPPOSI has launched a campaign to identify and recruit 25 members of the public, broadly representative of the Irish population, willing to step up as members of a Citizens’ Jury to deliberate on the matter of Access to Health Information. Health information can […]

Patient Advocacy Service

The Patient Advocacy Service (PAS) provides free, independent and confidential information and advocacy support to people in Ireland who wish to make a formal complaint about their care in a Health Service Executive (HSE) funded public acute hospital, and in the aftermath of Patient Safety Incidents. People looking for support can contact the PAS confidential […]

Keeping Well This Winter

Our Health Service this Winter Look out for your Keeping well this Winter booklet in the post. It is being delivered to every household in Ireland over the coming weeks. This booklet contains essential health information and advice to help you plan for the winter months ahead, as we live with the impact of COVID-19 (coronavirus) on […]

Disability Legal Information Clinic – now online!

The Disability Legal Information Clinic, run by the Centre for Disability Law and Policy in NUI Galway, will be completely online for the 2020/2021 academic year. The clinic provides free, accessible, confidential legal information on disability related legal issues and will now be available right across Ireland for disabled people, their families and supporters. The […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified