Ireland team gets ready to compete at the Powerchair Football World Cup 2023 in Sydney

  The Association of Irish Powerchair Football (AIPF) is the governing body of powerchair football in Ireland. Set up in 2009, it organises league and cup competitions, prepares teams for international tournaments and events, and develops new teams and clubs around the country. The ethos of the AIPF is to give every powerchair user in […]

Gallery of younger members’ activities

Take a tour of our gallery of young members’ activities from earlier this year as part of MDI’s Youth Services Programme. They include alpaca trekking, a virtual reality youth club, an outing to Newgrange Farm, an arts and crafts workshop and a day out on the river, Shannon. MDI member, Calvin Reaney (above), was one […]

Muscular Dystrophy Ireland – Dr John Roche Education Bursary

We are excited to announce that the Muscular Dystrophy Ireland-Dr John Roche Education Bursary, totalling €2,000 annually, is now open for applications. MDI hopes to support two of our members with €1,000 each towards their education costs this Autumn. The deadline for applications is Friday 28 July 2023. You can find out more about the bursary here.

Meet our new Research Officer, Dympna Mulroy

We are really delighted to welcome our new Research Officer, Dympna Mulroy, and to introduce her to you. Dympna has a strong background, wearing a variety of hats, working to improve the quality of life of people living with neuromuscular conditions. We asked her to tell us more… Welcome to the MDI team, Dympna! Can […]

E-learning platform for healthcare professionals

TREAT-NMDs interactive e-learning platform is aimed at healthcare professionals involved in the diagnosis and treatment of people with neuromuscular conditions. You can expect to find free courses and resources in relation to: Limb Girdle Muscular Dystrophy, including perspectives of people living with the condition, muscle biopsy as a tool for diagnosis and best practice for […]

MDI-Trinity College Dublin partnership on physiotherapy research

We are very pleased to continue our research partnership with the Discipline of Physiotherapy, Trinity College. In the first study, forty three physiotherapists from the Republic of Ireland with experience of treating people with muscular dystrophy were surveyed. It was found that physiotherapists assessed and treated people with muscular dystrophy in a variety of settings. […]

Coast2Coast fundraiser raises €16,810 for MDI

We were so delighted to meet Henry Fleming and the incredible team who ran Coast2Coast recently in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. Our CEO, Alan Breathnach, was honoured to receive a cheque for €16,810.75 from Henry’s nephew and MDI member, Conor McAuley. Our sincere thanks to you all and to […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified