Parent Project Muscular Dystrophy 2023 Annual Conference recordings are now available on YouTube. https://www.youtube.com/@ParentProjectMD Topics include the Impact of Testosterone, Battling Behaviours, Gene Therapy, Clinical Trials, Cardiac Involvement, Mental Wellness and more.
The Association of Irish Powerchair Football (AIPF) is the governing body of powerchair football in Ireland. Set up in 2009, it organises league and cup competitions, prepares teams for international tournaments and events, and develops new teams and clubs around the country. The ethos of the AIPF is to give every powerchair user in […]
Take a tour of our gallery of young members’ activities from earlier this year as part of MDI’s Youth Services Programme. They include alpaca trekking, a virtual reality youth club, an outing to Newgrange Farm, an arts and crafts workshop and a day out on the river, Shannon. MDI member, Calvin Reaney (above), was one […]
We are excited to announce that the Muscular Dystrophy Ireland-Dr John Roche Education Bursary, totalling €2,000 annually, is now open for applications. MDI hopes to support two of our members with €1,000 each towards their education costs this Autumn. The deadline for applications is Friday 28 July 2023. You can find out more about the bursary here.
We are really delighted to welcome our new Research Officer, Dympna Mulroy, and to introduce her to you. Dympna has a strong background, wearing a variety of hats, working to improve the quality of life of people living with neuromuscular conditions. We asked her to tell us more… Welcome to the MDI team, Dympna! Can […]
TREAT-NMDs interactive e-learning platform is aimed at healthcare professionals involved in the diagnosis and treatment of people with neuromuscular conditions. You can expect to find free courses and resources in relation to: Limb Girdle Muscular Dystrophy, including perspectives of people living with the condition, muscle biopsy as a tool for diagnosis and best practice for […]
We are very pleased to continue our research partnership with the Discipline of Physiotherapy, Trinity College. In the first study, forty three physiotherapists from the Republic of Ireland with experience of treating people with muscular dystrophy were surveyed. It was found that physiotherapists assessed and treated people with muscular dystrophy in a variety of settings. […]
We were so delighted to meet Henry Fleming and the incredible team who ran Coast2Coast recently in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. Our CEO, Alan Breathnach, was honoured to receive a cheque for €16,810.75 from Henry’s nephew and MDI member, Conor McAuley. Our sincere thanks to you all and to […]
Our December 2022 issue of MDI News Update is out now. You can read it here.