Coast2Coast fundraiser raises €16,810 for MDI

We were so delighted to meet Henry Fleming and the incredible team who ran Coast2Coast recently in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. Our CEO, Alan Breathnach, was honoured to receive a cheque for €16,810.75 from Henry’s nephew and MDI member, Conor McAuley. Our sincere thanks to you all and to […]

Register with Electric Ireland as a Priority or Special Service customer

Electric Ireland is committed to providing support to customers who have special requirements where continuity of energy supply is critically important. Electric Ireland customers can register as either a Priority Service customer or a Special Service customer. Priority Service customer Priority Service customers are customers who are dependent on medical equipment including but not limited […]

MDI selected for AIB Community Fund

We are delighted that Muscular Dystrophy Ireland has been selected as one of 70 local charities in communities across Ireland to be receive funding from the annual AIB Community €1 Million Fund ☘️.  Thanks to AIB customers, employees and the public who nominated charities in their region on causes that matter most to them and […]

Budget 2023 and you

Budget 2023 and Disability Allowance It was announced that people who get Disability Allowance will get a once-off payment of €500 in November 2022. From January 2023, the maximum rate of Disability Allowance will increase by €12 with proportional increases for people on reduced rates of payment. The weekly rate for a qualified child will […]

Would you like to share your views with RTE on disability and the cost of living?

A journalist working in the RTÉ Newsroom is putting together some pre-budget coverage for their website and social media that will show people’s moods and views ahead of the budget with the cost of living crisis and energy hikes. They would really like to focus on the views of people with disabilities and carers – […]

AGM-2022

Muscular Dystrophy Ireland Annual General Meeting Saturday 24 September 2022 12.30pm Muscular Dystrophy of Ireland Company Limited by Guarantee will hold its 2022 Annual General Meeting (“AGM”) on Saturday, 24 September 2022 at 12.30pm at the registered office of the Company at 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 and, for members using Zoom […]

Safety notice – Medtronic MiniMed 600 and 700 series insulin pumps

The Health Products Regulatory Authority (HRPA) has published a Safety Notice to raise awareness of a potential issue affecting the battery cap of all Medtronic MiniMed 600 and 700 series insulin pumps. The metal contact points of the battery cap may become loose or fall off, resulting in an incomplete battery connection and no power […]

Scholarships in end of life and bereavement care

Irish Hospice Foundation are offering four postgraduate scholarships to people working or volunteering in end of life or bereavement care for the 2022/2023 academic year. You can find information about eligibility criteria, conditions, and further details here. The closing date for applications is 10 August 2022.    

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified