Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Powerchair football

Would you like to get involved in powerchair football in the South-East? Wexford-based MDI member, Conor Doyle, is interested in starting a powerchair football team in the South-East. If you are interested, he’d be delighted to hear from you. All genders and ages (12 years and upwards) are welcome! Training would take place in either […]

Orphan Drugs Bill

Legislation to streamline the HSE decision-making process on orphan drugs We are pleased to see that legislation is being brought forward to the Dáil that will seek to streamline the HSE decision-making process on orphan drugs. Orphan drugs are medicinal products intended for diagnosis, prevention or treatment of life-threatening or very serious conditions that are […]

NTA Survey of Taxi’s and Hackneys

The National Transport Authority (NTA) is committed to the provision of high quality, accessible, sustainable transport connecting people across Ireland. In furtherance of this aim NTA has engaged Behaviour & Attitudes, an independent market research company based in Dublin, to conduct this survey with the aim of getting information on the demand, delivery and accessibility levels of […]

Looking Beyond COVID-19: The Future of Neurological Care

Description The pandemic has led to reflection and debate across healthcare in Ireland as to how services can recover from disruption and potentially overcome some of the systemic issues that impacted our health system pre COVID-19. Neurological care services are embracing new treatment approaches and technologies including those developed here in Ireland. On the other […]

Update from HSE – online registration for COVID-19 vaccine

From today, Tuesday 4 May, people aged between 50 and 59 can register for their COVID-19 vaccine online. To avoid delays when we open registrations this week, we are asking people to register on different days depending on their age:  Registration dates and age groups Tuesday, 4 May, people aged 59 should register Wednesday, 5 […]

HSE update – 23 April – COVID-19 vaccination programme

The vaccination programme continues to be rolled out nationwide, and as of 20th April 1,240,965 vaccines have been administered in Ireland. Group 3 – aged 70 and over Vaccination of people aged 70 and over continues by GPs, who are now largely vaccinating the group aged 70 to 74.  Our National Ambulance Service is also providing […]

HSE update on COVID-19 vaccination programme

The vaccination programme continues to be rolled out nationwide, and as of 13th April 1,094,964 vaccines have been administered in Ireland. While we have largely completed vaccinations for the first 2 allocation groups, we are still working to vaccinate these groups: Group 3 Vaccination of people aged 70 and over continues by GPs, who are now […]

Update on AstraZeneca vaccine and vaccination programme

All vaccination appointments on 13 April cancelled As you may be aware, the HSE announced that all AstraZeneca COVID-19 vaccination appointments planned for today, Tuesday, 13 April have been cancelled. If you had an appointment to get the AstraZeneca COVID-19 vaccine today, you will be contacted to rearrange your appointment. The HSE is now assessing […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified