Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

MDI Virtual AGM – “Shout Out to Members”

This year, The MDI Board have made the decision, considering Covid 19 Pandemic, that the AGM process will be carried out electronically, including election process and holding of a virtual AGM on 12th September 2020. And we need your help! To run a successful charity, we need member participation on our board! We simply could […]

Sláintecare and HSE. Free online counselling

In response to the mental health challenges posed by COVID 19, MyMind is now working with Sláintecare and the HSE to provide fully subsidised counselling, psychotherapy and psychological support for individuals over 18 years in all regions of Ireland. The main mental health issues include issues arising from unemployment, bereavement, social isolation/cocooning, illness, stress, depression, […]

Free online course in Mindfulness and Compassion

We thought that some of our members might be interested this free Mindfulness and Compassion six-week course which is available online at this link: https://www.sueredmond.com/onlinecourse. Sue Redmond has a Diploma in Mindfulness-Based Stress Reduction Teacher training and Mindfulness-Based Compassionate Living Teacher training.

HoldFirm Colouring Sheets for children and adults

There are great HoldFirm colouring sheets available for children and adults on the HSE website in the drop down menu https://www.hse.ie/eng/services/news/newsfeatures/covid19-updates/partner-resources/ Links to downloadable PDF’s of these colouring sheets are also below. children-s-colouring-sheet-1 children-s-colouring-sheet-2 children-s-colouring-sheet-holdfirm-rainbow adult-colouring-sheet-holdfirm

Most updated Info on COVID-19 and use of face masks

For the most up to date information and advice on Coronavirus, please go to: https://www2.hse.ie/coronavirus/ and https://www.hpsc.ie/a-z/respiratory/coronavirus/novelcoronavirus/ For information on face coverings for public use, please see: https://www2.hse.ie/conditions/coronavirus/face-masks-disposable-gloves.html  

Info about CRC’s services during Covid-19

You can find out information about the Central Remedial Clinic’s services during Covid-19 by clicking on this link https://www.crc.ie/information-on-covid-19/ – the CRC advise you to keep an eye on the website for further updates. Parents/carers with any queries should call the main number 018542200 and one of the team will be in contact. Also, check out these […]

Children’s Health Ireland (CHI) Update

(CHI) at Crumlin For the most up-to-date information from Children’s Health Ireland (CHI) at Crumlin on Inpatient and Outpatient Appointments and also Advice for Neurodisability Patients, click on the link below. In the coming weeks, CHI plan to send up-to-date messaging about outpatient appointments across all Children’s Health Ireland hospitals. Until then, the most accurate […]

HoldFirm – the HSE’s new campaign

HoldFirm – the HSE’s new campaign Information on the HSE’s new campaign called HoldFirm, (which was launched on the 9th May 2020) contains posters, booklets and videos to raise awareness about preventing the spread of coronavirus. For more details click here.

AMRIC Education Programme

AMRIC Education Programme On the 1st May 2020, the COVID-19 Infection Prevention and Control Guidance for Home Visits webinar took place. Information for this webinar, as well as other webinars can be found here.

Launch of the COVID-19 Disability Rights Monitor & Survey

Launch of the COVID-19 Disability Rights Monitor & Survey With the endorsements of the UN Special Rapporteurs on the Right to Health and Rights of Persons with Disabilities, a coalition of six disability rights organisations launched an international monitoring initiative entitled “COVID-19 Disability Rights Monitor” to conduct rapid independent monitoring of state measures concerning persons […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified