Muscular Dystrophy Ireland and Myotonic Dystrophy Support Group UK (MDSG) are delighted to invite you to attend a get-together with Michael Walker from MDSG on Tuesday 13 September from 12:00 to 03:00 pm. At the get-together, you will have an opportunity to hear about the work of […]
Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.
Safety notice – Medtronic MiniMed 600 and 700 series insulin pumps
The Health Products Regulatory Authority (HRPA) has published a Safety Notice to raise awareness of a potential issue affecting the battery cap of all Medtronic MiniMed 600 and 700 series insulin pumps. The metal contact points of the battery cap may become loose or fall off, resulting in an incomplete battery connection and no power […]
Have your say on the regulation of Home Support/Personal Assistance Services!
The closing submission date for the Department of Health’s Public Consultation on Draft Regulations for Providers of Home Support Services has been extended to 5pm on Thursday 4 August 2022. You can complete the survey here and also find a copy of the regulations in accessible formats. If you’d like further information, email HSRConsultation@health.gov.ie.
Appelgreen partners with FuelService to make fuel stations more accessible
Filling up the car is one of the biggest challenges that disabled drivers experience. Did you know that Applegreen has partnered with FuelService to make fuel stations more accessible? Through FuelService, drivers can now contact Applegreen stations ahead of their arrival and see if they are able to assist them at the pump. Once they […]
PATIENT SAFETY NOTIFICATION: NASOGASTRIC TUBE MISPLACEMENT
PATIENT SAFETY NOTIFICATION: NASOGASTRIC TUBE MISPLACEMENT AND ADVICE FOR ENHANCING MANAGEMENT OF NASOGASTRIC TUBE PLACEMENT Nasogastric (NG) tubes are used to provide liquid nutrition, fluid and medication to patients who require short-term nutritional support. They can also be used for the removal of gastric contents. NG tube placement is common practice and many are placed […]
Reminder – deadline for membership renewal – 30 April
There’s still time to renew your membership with Muscular Dystrophy Ireland. Remember to join by 30 April to enjoy full membership entitlements. You can find out more and renew here.
Anam Cara support group for bereaved parents
Anam Cara provides information, resources and bereavement support after the death of a child of any age and through all circumstances to all bereaved parents. They will host a very special online group on a monthly basis, starting on Tuesday 15th March at 7pm. The group is specifically for parents living with no surviving children. […]
LAUNCH OF NEW GUIDE TO SCHEMES AND SERVICES FOR DISABILITY: ILLNESS, DISABILITY AND CARING
‘Your Guide to our Schemes and Services: Illness, Disability and Caring’ has been published by the Department of Social Protection. You can find out more information and access the guide, here.
#Resolution4Rare
MDI encourages you to join the global community of people living with rare conditions, led by Rare Diseases International, EURORDIS – Rare Diseases Europe and the NGO Committee for Rare Diseases, in calling for a UN Resolution that recognises the complex challenges faced by people living with rare condition, and promotes full participation and inclusion […]
LGMD Awareness Day
Limb Girdle Muscular Dystrophy (LGMD) Awareness Day – 30 September – is a collaborative effort to raise awareness globally of the rare neuromuscular conditions known as LGMD. As part of Limb Girdle Muscular Dystrophy Awareness Day, we are sharing facts about the condition https://www.lgmd-info.org/what-is-lgmd/lgmd-facts/. Please LIKE, COMMENT and SHARE this post to help raise awareness of LGMD! We invite everyone […]
