There’s still time to renew your membership with Muscular Dystrophy Ireland. Remember to join by 30 April to enjoy full membership entitlements. You can find out more and renew here.
Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.
Anam Cara support group for bereaved parents
Anam Cara provides information, resources and bereavement support after the death of a child of any age and through all circumstances to all bereaved parents. They will host a very special online group on a monthly basis, starting on Tuesday 15th March at 7pm. The group is specifically for parents living with no surviving children. […]
LAUNCH OF NEW GUIDE TO SCHEMES AND SERVICES FOR DISABILITY: ILLNESS, DISABILITY AND CARING
‘Your Guide to our Schemes and Services: Illness, Disability and Caring’ has been published by the Department of Social Protection. You can find out more information and access the guide, here.
#Resolution4Rare
MDI encourages you to join the global community of people living with rare conditions, led by Rare Diseases International, EURORDIS – Rare Diseases Europe and the NGO Committee for Rare Diseases, in calling for a UN Resolution that recognises the complex challenges faced by people living with rare condition, and promotes full participation and inclusion […]
LGMD Awareness Day
Limb Girdle Muscular Dystrophy (LGMD) Awareness Day – 30 September – is a collaborative effort to raise awareness globally of the rare neuromuscular conditions known as LGMD. As part of Limb Girdle Muscular Dystrophy Awareness Day, we are sharing facts about the condition https://www.lgmd-info.org/what-is-lgmd/lgmd-facts/. Please LIKE, COMMENT and SHARE this post to help raise awareness of LGMD! We invite everyone […]
Safety notice for specific breathing devices
We wish to let you know that Philips has issued a Field Safety Notice for specific breathing devices. The Field Safety Notice informs customers and users of the devices of potential impacts on patient health and clinical use related to this issue, as well as instructions on actions to be taken. Additionally, the notification provides details of […]
17 facts about Duchenne muscular dystrophy
On World Duchenne Awareness Day, we are sharing 17 facts here about Duchenne muscular dystrophy. You can help raise awareness by liking and sharing!
MDUK Seminar on Duchenne MD
MDUK Muscles Matter 2021: seminar on Duchenne muscular dystrophy (DMD) on 9 September Join Muscular Dystrophy UK on Thursday, 9 September from 1pm-3pm for their MDUK Muscles Matter 2021 online seminar on Duchenne muscular dystrophy. The session will feature a panel of speakers and will cover the latest research into Duchenne as well as a […]
Paediatric-focused seminar on spinal muscular atrophy (SMA) from MDUK
Join Muscular Dystrophy UK on Monday 23 August 10am-12pm for their MDUK Muscles Matter 2021 online seminar on spinal muscular atrophy (SMA). The session will be paediatric-focused, with a panel of researchers, paediatric neurologists and physiotherapists. There will be presentations on the latest research into SMA, discussions on how to manage the condition as well […]
Registration for 12 to 15-year-olds to get a vaccine opens on Thursday 12 August
Registration for 12 to 15-year-olds to get a vaccine will open on Thursday 12 August. You can find out how to get a vaccine for this age group here. The HSE particularly recommends that 12 to 15-year-olds get vaccinated if they have a health condition that puts them at higher risk of severe illness from […]
