Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

‘Vulnerable’ Customers’ Registers for users of energy and water

We wish to share information with you from Safeguarding Ireland about ‘Vulnerable’ Customers’ Registers which exist for users of energy and water. You may find it beneficial to register. MDI wishes to acknowledge that the Commission of Regulation of Utilities uses the term ‘vulnerable’ to refer solely to a person’s medical vulnerability. All energy and […]

Making Inclusion a Reality

Invitation to online launch of exciting new project in South Dublin area: Making Inclusion a Reality You are invited to attend the launch of “Making Inclusion a Reality”, a project being delivered by Independent Living Movement Ireland (ILMI) and South Dublin County Council (SDCC), funded by the Irish Human Rights and Equality Commission (IHREC). “Making […]

#HoldFirm Campaign

HoldFirm Campaign HoldFirm is part of the ongoing COVID-19 public health advice programme from the HSE and the Department of Health. The HoldFirm campaign first aired in May 2020, as the end of the first phase of restrictions came into sight. Our President’s words, from the poem ‘Take Care’ written in 1993, is the inspiration […]

Action Duchenne Virtual Event

Action Duchenne held a virtual event recently for newly diagnosed families: Duchenne 101, an overview of the Standards of Care for Duchenne, Duchenne research, practical tips and benefits, and a Q and A session with the Action Duchenne team. You can watch it by following this link https://www.actionduchenne.org/newly-diagnosed-event-watch-recordings/.

Flu Vaccine for Children aged 2-12 years

Flu Vaccine for Children aged 2-12 years This autumn, children aged 2-12 years are offered the flu vaccine free of charge. The vaccine is administered by the GP or pharmacist using a nasal spray. Children carry the flu virus in their system longer than adults do and they can spread the flu easily to others. […]

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals including Children’s Hospitals, Rehabilitation Services and Other Healthcare Settings Providing a Similar Intensity of Care This guidance is for visiting inpatients in acute services. You can download the guide here.

COVID-19 Guidance for Older People and Others at Risk

COVID-19 Guidance for Older People and Others at Risk of Severe Disease on Reducing Risk of COVID-19 Infection The guide, developed in consultation with Alone, SAGE and the National Care Alliance, is for people who live in the community and for those who help them if and when they need help. You can download the guide […]

Public Health Information

As always, for the most up to date information and advice on Coronavirus, please go to: https://www2.hse.ie/coronavirus/ and https://www.hpsc.ie/a-z/respiratory/coronavirus/novelcoronavirus/. Clinical and professional guidance relating to COVID-19 is available on www.hpsc.ie where you’ll find up to date guidance for healthcare settings and non-clinical settings.

MDI / Citizens Information Centre Q&A Session

MDI are running a free Citizens Information and Q&A Session on Benefits & Entitlements for People with Disabilities on the 17th of November via Zoom for members. If this information session is of interest to you, please see flyer below for more information. Due to demand we are now running the same workshop on two days: Monday 16th […]

Important information and Covid 19 guidance as we enter Level 5 restrictions

Dear Members, We hope this finds you well. We are emailing you to keep you up-to-date on our services and important Covid 19 guidance and information from the HSE as the country goes onto Level 5 restrictions for the next six weeks. If you have any questions or support needs, please do get in touch […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified