MDI encourages you to join the global community of people living with rare conditions, led by Rare Diseases International, EURORDIS – Rare Diseases Europe and the NGO Committee for Rare Diseases, in calling for a UN Resolution that recognises the complex challenges faced by people living with rare condition, and promotes full participation and inclusion […]
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LGMD Awareness Day
Limb Girdle Muscular Dystrophy (LGMD) Awareness Day – 30 September – is a collaborative effort to raise awareness globally of the rare neuromuscular conditions known as LGMD. As part of Limb Girdle Muscular Dystrophy Awareness Day, we are sharing facts about the condition https://www.lgmd-info.org/what-is-lgmd/lgmd-facts/. Please LIKE, COMMENT and SHARE this post to help raise awareness of LGMD! We invite everyone […]
Safety notice for specific breathing devices
We wish to let you know that Philips has issued a Field Safety Notice for specific breathing devices. The Field Safety Notice informs customers and users of the devices of potential impacts on patient health and clinical use related to this issue, as well as instructions on actions to be taken. Additionally, the notification provides details of […]
17 facts about Duchenne muscular dystrophy
On World Duchenne Awareness Day, we are sharing 17 facts here about Duchenne muscular dystrophy. You can help raise awareness by liking and sharing!
MDUK Seminar on Duchenne MD
MDUK Muscles Matter 2021: seminar on Duchenne muscular dystrophy (DMD) on 9 September Join Muscular Dystrophy UK on Thursday, 9 September from 1pm-3pm for their MDUK Muscles Matter 2021 online seminar on Duchenne muscular dystrophy. The session will feature a panel of speakers and will cover the latest research into Duchenne as well as a […]
Paediatric-focused seminar on spinal muscular atrophy (SMA) from MDUK
Join Muscular Dystrophy UK on Monday 23 August 10am-12pm for their MDUK Muscles Matter 2021 online seminar on spinal muscular atrophy (SMA). The session will be paediatric-focused, with a panel of researchers, paediatric neurologists and physiotherapists. There will be presentations on the latest research into SMA, discussions on how to manage the condition as well […]
Registration for 12 to 15-year-olds to get a vaccine opens on Thursday 12 August
Registration for 12 to 15-year-olds to get a vaccine will open on Thursday 12 August. You can find out how to get a vaccine for this age group here. The HSE particularly recommends that 12 to 15-year-olds get vaccinated if they have a health condition that puts them at higher risk of severe illness from […]
Building the Future – free online careers event for students and graduates with disabilities, 23-27 August
Students and graduates will get an opportunity to experience mock interviews, CV clinics, attend workshops and also chat with employers face-to-face all from the comfort of their own home! You can find out more and register here. AHEAD is an independent non-profit organisation working to create inclusive environments in education and […]
Sell Employment Course for People with Disabilities
Below are details of a course designed for people with disabilities who have a business idea and wish to undertake a training programme that will assist them to evaluate the viability of their business idea and develop their business skills. For more details see poster below or email: chelsea.hollywood@tudublin.ie Self-Employment-for-People-with-Disabilities-Module
Launch of NAI Report on online service provision across neurological care in response to COVID-19
Today – 22 July – is World Brain Day and the Neurological Alliance of Ireland (NAI) have launched their report on online service provision across neurological care services in response to COVID-19. When the pandemic hit in 2020, many services moved online, resulting in significant changes both for people availing of services and organisations providing […]
