Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Sell Employment Course for People with Disabilities

Below are details of a course designed for people with disabilities who have a business idea and wish to undertake a training programme that will assist them to evaluate the viability of their business idea and develop their business skills.  For more details see poster below or email: chelsea.hollywood@tudublin.ie Self-Employment-for-People-with-Disabilities-Module

What is myasathenia?

As part of Myasthenia Awareness month, we wish to raise awareness about this group of neuromuscular conditions. You can find out more about myasthenia by following this link https://www.myaware.org/what-is-myasthenia. If you’d like any further information, please contact us at mdiinfo@mdi.ie.

DDAI webinar on the Disabled Drivers’ and Passengers’ Tax Relief Scheme

MDI is happy to share a recording of a recent webinar on the Disabled Drivers’ and Passengers’ Tax Relief Scheme (and links to other relevant information) with our thanks to Richard Ryder at Disabled Drivers Association Ireland (DDAI). If you have any further questions, please contact your Family Support Worker. Recording of webinar: https://us02web.zoom.us/rec/share/NwdDq_NwEBBtPPfxez5I168SBH5_ cYD1rl4OPrvBhDNnp3_0ke58f2x2Ojm2T_Y.tD0qww20aHfb-zSw Passcode: […]

New Wheelchair Liveable Home Form

For the first time, a wheelchair user in Ireland can apply for a wheelchair liveable home on their housing application. The new application form – from the Department of Housing, Planning, Community and Local Government – was published last month and acknowledges the need for wheelchair liveable accommodation to be included as a requirement. The Irish […]

Parent Project MD Conference

Parent Project Muscular Dystrophy Conference Registration is now open for this year’s Parent Project Muscular Dystrophy (PPMD) virtual conference. It takes place from 23 to 26 June and promises four days of information education, conversation and community. Find out more here https://www.parentprojectmd.org/get-involved/attend-events/annual-conference-2021-virtual/ Please note timings are USA Eastern Daylight Time (EDT).

Santhera Pharmaceuticals Duchenne Drug Development Update

March 24: Santhera Pharmaceuticals Duchenne Drug Development Update – Vamorolone in Duchenne muscular dystrophy Parent Project Muscular Dystrophy and Santhera Pharmaceuticals are holding a webinar on Wednesday, March 24 at 1 PM (USA Eastern Daylight Time – 5pm Irish time). Santhera will provide an update to the community about the investigational therapy vamorolone, the use of steroids to treat Duchenne muscular […]

NAI report reveals critical gaps in neurology services

The Neurological Alliance of Ireland (NAI) has recently published a report “Resourcing of Neurology Services in Ireland Five Years on: 2015-2020” based on a survey of clinicians from 12 neurology centres across Ireland. It reveals critical gaps in neurology services. MDI is a member of the NAI. For more information, follow this link. https://www.nai.ie/go/news/15-3-2021-nai-report-reveals-critical-gaps-in-neurology-services

Update from HSE on COVID-19 vaccination programme

The vaccination programme continues to be rolled out nationwide, and more than 446,474 vaccines have been administered as of the 1st March 2021. As we move into next week, vaccination of Group 3 continues, with people aged 80 and over being invited for their vaccines by GPs. When this group is complete, we’ll move on to […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified