Ollie’s 200km walk for MDI – interview with MDI member, Paddy Hickey

MDI member, Paddy Hickey, is planning to walk over 200km from Castlebar to Enfield this August to raise awareness about the neuromuscular condition, Bethlem myopathy, and raise funds for Muscular Dystrophy Ireland. We were delighted to chat with Paddy about it recently… Paddy, can you give us a little background about why you’ve chosen to […]

Coast2Coast fundraiser raises €16,810 for MDI

We were so delighted to meet Henry Fleming and the incredible team who ran Coast2Coast recently in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. Our CEO, Alan Breathnach, was honoured to receive a cheque for €16,810.75 from Henry’s nephew and MDI member, Conor McAuley. Our sincere thanks to you all and to […]

Christmas video for MDI – thank you all at CJK Engineering!

Our heartfelt thanks to everyone at CJK Engineering who played a part in creating this magical Christmas video in aid of MDI. The video would not have been possible without the 108 incredible people who came together (on a Saturday!) to take part. For every person who came, CJK donated €50 which resulted in a […]

Coast 2 Coast Challenge in aid of IWA and MDI

It’s worth watching this short video of the lads’ Coast 2 Coast Challenge in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. The emotion at the finish line highlighted the journey travelled and the enormous contribution made by the team of 8 runners to raise funds and awareness. Our huge thanks to everyone […]

Stunning video of Michael Ward’s 4 Peaks Challenge

Watch stunning Irish scenery in this video of Michael Ward’s 4 Peaks Challenge in aid of Muscular Dystrophy Ireland this summer. Our huge thanks to Michael and his supporters who raised €3,560. Míle buíochas daoibh!

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified