Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Self Care Course for Carers

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 session course for Carers & Parents. Beginning Friday 30th April and running once a month from April to December From 6:30pm-8pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie/0866066103 by Friday the 23rd of April. For more […]

Self Care Course for Members

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 week course for members with muscular dystrophy. Beginning Wednesday 28th of April and running for 8 weeks from 11:30am-1:30pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie / 0866066103 by Friday the 23rd of April. For more […]

MDI Zoom Support Groups

MDI Zoom Support Group for MDI Members with muscular dystrophy From 2pm – 4pm – beginning Tuesday 6th April (for 8 weeks) More details here: SupportGroupFlyer-MEMBERS MDI Zoom Support Group for Parents and Carers From 6.30pm – 8.30pm – beginning Thursday 8th April (for 8 weeks) More details here: SupportGroupFlyer-PARENTS

Living Well

Living Well is a recognised self-management support programme, based on the evidence-based Stanford model. This programme is free of charge and available to adults living with any long-term health condition. The aim of the programme is to equip and empower adults with practical skills (setting goals, action planning, problem solving) and confidence, so they can […]

Invitation to take part in consultation on draft State Report on the UN CRPD

Disability Federation of Ireland is undertaking a consultation on the draft State Report on the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD). These consultations will inform their work as a member of the Disability Participation and Consultation Network, (DPC Network). This is a group of disability organisations funded by the […]

Raise A Toastie to Raise Awareness on Rare Disease Day

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the voices of people living with rare diseases heard. Getting involved couldn’t be easier – simply create a delicious toasted-sandwich in the comfort of your own home, with your family, or host a virtual event […]

Picturing Communication

Would you like to take part in a Trinity College Dublin Research project which aims to learn more about how people who have communication impairments / experience communication difficulties think about communication? See below for more details.    

Getting Ireland’s Adults Covid-Vaccination ready – a public lecture from the Irish Gerontological Society on Wed 17 February from 3.00 – 4.15pm. For more information, follow the link here.

Musical Bingo

MDI presents Musical Bingo via Zoom for young members (under 18’s). Friday 14th May at 6pm.  Register by Friday 7th May by contacting your local Support Worker or by calling Sinead on: 086 6066104.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified