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WEBINAR ON AIDS / ADAPTATIONS TO ASSIST DISABLED DRIVERS

Join Disabled Drivers’ Association Ireland at 5pm on this Thursday 21st October for a FREE webinar. This webinar will explore the various aids / adaptations available to assist disabled drivers. It will cover: 1. Helpful Tips 2. Most Common Driver Adaptations – Hand Controls, Steering Aids, Left Foot Accelerator 3. Seating, Storage and Lift. Register in […]

Nationwide Campaign for More Neurology Nurses 

The Neurological Alliance of Ireland’s (NAI) campaign for more neurology nurses was launched this morning and will focus on University Hospital Limerick during October. See how you can take part in the campaign by visiting www.patientsdeservebetter.ie. Muscular Dystrophy Ireland is a member of the NAI. 

UN CRPD Advocacy Training for People with Disabilities

Disability Federation of Ireland invite you to join them for a free online training which will focus on helping people with disabilities to use the United Nations Convention on the Rights of People with Disabilities (UN CRPD) as an advocacy tool. The training is open to people with disabilities and will focus on the use […]

Get ready for Make Way Day – Friday 24 September!

Make Way Day is a National Public Awareness Campaign that highlights the issues people with disabilities face getting around their local communities. This year’s campaign takes place on takes place on Friday, 24 September and the theme is “Make Way in My 5k” and “Hey, this blocks my way!” is the message. You can find out how to get involved and […]

Paediatric-focused seminar on spinal muscular atrophy (SMA) from MDUK

Join Muscular Dystrophy UK on Monday 23 August 10am-12pm for their MDUK Muscles Matter 2021 online seminar on spinal muscular atrophy (SMA). The session will be paediatric-focused, with a panel of researchers, paediatric neurologists and physiotherapists. There will be presentations on the latest research into SMA, discussions on how to manage the condition as well […]

Self-care courses

THE COMPASIONATE SPACE FO MEMBERS WITH MUSCULAR DYSTROPHY Due to the success of our previous Self-care courses MDI are running a third course starting in July beginning Wednesday 14th of July and running every fortnight. YOU CAN JOIN HOWEVER AT ANY TIME. This workshop is free of charge and is aimed at and tailored to […]

Recording of webinar on wheelchair accessible vehicles

In case you missed it, below is a link recording of the webinar on ZOOM which MDI hosted for members on 28th June.  This session was facilitated by Richard Ryder from the Disabled Drives Association of Ireland (DDAI). The password to log in to this recording is: =0!U%047 https://us02web.zoom.us/rec/share/tjW7n-uyWS2EyozOIYHEnnFE5_txcYsWiw0K5V7fRNuh7k-v_JS5afkOj4lYOO4m.OVImVUln8288qYwo  

Zoom “School for Spies”

MDI Youth Services are hosting a Zoom “School for Spies” on Friday 16th July for members under 18.  Can you “guess the spy” or “uncover the mystery”?  For more info contact your local Youth Worker of phone Sinead on 086 3899285.  Closing date for registration: Wednesday 14th July.

Webinar on Wheelchair Accessible Vehicles

MDI is holding a free information webinar on ZOOM for members on 28th June from 12.00 – 12.45 pm. This session will be facilitated by Richard Ryder from the Disabled Drives Association of Ireland (DDAI) and will focus on the provision of information about wheelchair accessible vehicles and businesses that provide supporting services. To register, contact […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified