Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Invitation to take part in consultation on draft State Report on the UN CRPD

Disability Federation of Ireland is undertaking a consultation on the draft State Report on the United Nations Convention on the Rights of Persons with Disabilities (UN CRPD). These consultations will inform their work as a member of the Disability Participation and Consultation Network, (DPC Network). This is a group of disability organisations funded by the […]

Raise A Toastie to Raise Awareness on Rare Disease Day

Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the voices of people living with rare diseases heard. Getting involved couldn’t be easier – simply create a delicious toasted-sandwich in the comfort of your own home, with your family, or host a virtual event […]

Picturing Communication

Would you like to take part in a Trinity College Dublin Research project which aims to learn more about how people who have communication impairments / experience communication difficulties think about communication? See below for more details.    

Getting Ireland’s Adults Covid-Vaccination ready – a public lecture from the Irish Gerontological Society on Wed 17 February from 3.00 – 4.15pm. For more information, follow the link here.

Musical Bingo

MDI presents Musical Bingo via Zoom for adult members (over 18’s). Wednesday 24th February at 6.30pm.  Register by Monday 15th February by contacting your local Support Worker or by calling Sinead on: 086 3899285.  

‘Benefits and Entitlements – free workshops for MDI members 1 March

Places are still available for MDI’s two free Zoom workshops on 1 March – Benefits and Entitlements for People with Disabilities – facilitated by Citizens Information. You can register on Eventbrite – see links in the flyer below – or by contacting your Family Support Worker or Ewa at respite@mdi.ie. Click here here for more […]

Power of Disability Conference

The Union of Students in Ireland and AHEAD present the Power of Disability conference. About this Event The Union of Students in Ireland and AHEAD kindly supported by the Higher Education Authority invite you to the Power of Disability conference. This two day event will include discussions, presentations and feedback sessions encouraging students with disabilities to be leaders on their own campuses and provide information for students and Students’ Union officers on the issues facing […]

MDI DESIGN-A-CARD FOR CHRISTMAS 2020

As we start to look towards the end of what has been a very strange and often difficult 2020, the festive season is a time we often take to reflect back on the year and spend time with friends and family. MDI Christmas Cards has been a regular Fundraising Campaign for many years now, with […]

COMIC BOOK WRITING COMPETITION

MDI Youth Workers are running a comic book writing competition! Age categories: Under 12, 12-17 years old and 18-25 years old. Prize €50 voucher for each category. Contact your Youth Worker for a comic book writing pack. Send your creations to your Youth Worker to enter the competition. If you don’t have a Youth Worker […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified