Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.


As we start to look towards the end of what has been a very strange and often difficult 2020, the festive season is a time we often take to reflect back on the year and spend time with friends and family. MDI Christmas Cards has been a regular Fundraising Campaign for many years now, with […]


MDI Youth Workers are running a comic book writing competition! Age categories: Under 12, 12-17 years old and 18-25 years old. Prize €50 voucher for each category. Contact your Youth Worker for a comic book writing pack. Send your creations to your Youth Worker to enter the competition. If you don’t have a Youth Worker […]

MDI Virtual Youth Club

The MDI Youth Service is all about giving our young members the opportunity to get together, form friendships, share experiences, have fun and build confidence and self-esteem. It is primarily about meeting up with our members, face to face, giving our young members a social outlet however the Youth Worker team have now been exploring […]

Drawing Activity

Marvel Comic Book artist Will Sliney has launched a daily drawing activity challenge called #wewilldraw.   Every day Will shares a challenge on and videos showing he made his drawings, Kids,grown ups and celebrities are all getting involved, and you can too by following Will’s Twitter page through the link below Take a look at Will […]

Lunch Doodle

Mo Willems, artist-in-residence of the Kennedy Centre in the US, has begun daily drawing videos on YouTube called LUNCH DOODLES.   The videos will be streamed live every day at 6pm and are available on YouTube at any time. Click on image below.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified