Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

Self-care courses

THE COMPASIONATE SPACE FO MEMBERS WITH MUSCULAR DYSTROPHY Due to the success of our previous Self-care courses MDI are running a third course starting in July beginning Wednesday 14th of July and running every fortnight. YOU CAN JOIN HOWEVER AT ANY TIME. This workshop is free of charge and is aimed at and tailored to […]

Recording of webinar on wheelchair accessible vehicles

In case you missed it, below is a link recording of the webinar on ZOOM which MDI hosted for members on 28th June.  This session was facilitated by Richard Ryder from the Disabled Drives Association of Ireland (DDAI). The password to log in to this recording is: =0!U%047 https://us02web.zoom.us/rec/share/tjW7n-uyWS2EyozOIYHEnnFE5_txcYsWiw0K5V7fRNuh7k-v_JS5afkOj4lYOO4m.OVImVUln8288qYwo  

Zoom “School for Spies”

MDI Youth Services are hosting a Zoom “School for Spies” on Friday 16th July for members under 18.  Can you “guess the spy” or “uncover the mystery”?  For more info contact your local Youth Worker of phone Sinead on 086 3899285.  Closing date for registration: Wednesday 14th July.

Webinar on Wheelchair Accessible Vehicles

MDI is holding a free information webinar on ZOOM for members on 28th June from 12.00 – 12.45 pm. This session will be facilitated by Richard Ryder from the Disabled Drives Association of Ireland (DDAI) and will focus on the provision of information about wheelchair accessible vehicles and businesses that provide supporting services. To register, contact […]

National Carers’ Week takes place from 7 to 13 July 2021

National Carers’ Week is taking place from 7 to 13 July 2021. You can find out more about scores of brilliant online events throughout the week by clicking here.   Aspects to the week this year include live online Question and Answer sessions with several partner organisations (which will be facilitated on the National Carers’ Week […]

Fun Events in June

ZOOM FAMILY QUIZ FOR MEMBERS UNDER 18 (and their family) Friday 11th June at 6pm PRIZES AND FUN FOR ALL For more details contact your local Youth Worker or call 086 6066108                         MDI BINGO EVENING FOR ADULT MEMBERS Monday 21st June from 6.30pm […]

CHAT about how Accessible Technology helps me

Global Accessibility Awareness Day 2021 #GAAD2021 We will CHAT about how Accessible Technology helps me When: Thursday, 20th May 2021@3pm The FreedomTech Team are looking forward to hearing from the real AT experts on the 20th of May at 3 pm. Six speakers who use accessible technology will share their personal stories, including the opportunities […]

Self Care Course for Carers

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 session course for Carers & Parents. Beginning Friday 30th April and running once a month from April to December From 6:30pm-8pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie/0866066103 by Friday the 23rd of April. For more […]

Self Care Course for Members

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 week course for members with muscular dystrophy. Beginning Wednesday 28th of April and running for 8 weeks from 11:30am-1:30pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie / 0866066103 by Friday the 23rd of April. For more […]

MDI Zoom Support Groups

MDI Zoom Support Group for MDI Members with muscular dystrophy From 2pm – 4pm – beginning Tuesday 6th April (for 8 weeks) More details here: SupportGroupFlyer-MEMBERS MDI Zoom Support Group for Parents and Carers From 6.30pm – 8.30pm – beginning Thursday 8th April (for 8 weeks) More details here: SupportGroupFlyer-PARENTS

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified