Notice of Annual General Meeting of Muscular Dystrophy Ireland Company Limited by Guarantee (the ‘Company’)

NOTICE IS HEREBY GIVEN that the Annual General Meeting (‘AGM’) of the Company will be held on Saturday 27 May 2023 at 12.30 pm at MDI’s registered office, 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 and, for a member using Zoom facility, at the member’s home address as recorded in the register of members of the Company for the following purpose:

1. Approval of the Minutes of the AGM held on 24 September 2022.

2. Discussion relating to any matters arising from the Minutes of the 2022 AGM.

3. Chairperson’s Report.

4. To receive and consider the Company’s audited financial statements for the year ended 31 December 2022 together with the reports of the directors and of the auditors thereon.

5. To note the business of the Company.

6. To appoint Auditors.

7. To authorise the Directors to fix the remuneration of the Auditors.

8. The following Directors retire in accordance with the Constitution:

a) Mr Gareth Crowe
b) Ms Una McCourt – Position: Company Secretary
c) Dr Ashling Holland

9. By separate resolutions to elect as Directors the following, in accordance with the Constitution and, being eligible, offer themselves for re-election:

a) Mr Patrick Cassidy – Position: Chairperson
b) Mr Patrick Flanagan – Position: Vice Chairperson
c) Mr Eamon Daly – Position: Treasurer
d) Mr Eoghan Clifford
e) Dr Ashling Holland
f) Ms Una McCourt

10. By separate resolutions to elect as Directors the following who offer themselves for election:

a) Ms Aisling Glynn
b) Ms Sarah Judge – Position: Company Secretary
c) Ms Bindu Nair
d) Mr John O’Regan
e) Mr Kevin O’Regan

11. To transact any other business which may be properly transacted at an Annual General Meeting.

By order of the board

Una McCourt


Ms Una McCourt
Company Secretary

Dated 5 May 2023

Note: Only paid–up members who have paid their annual subscription on or by 31 March 2023 can be nominated for election to the Board of Directors and vote at the AGM on any resolutions.

Note: A member entitled to attend, speak and vote at the AGM is entitled to appoint a proxy to attend, speak and vote on their behalf. A proxy need not be a member of the Company.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified