Notice of AGM 2021

Notice of Annual General Meeting of
Muscular Dystrophy Ireland Company Limited by Guarantee (the “Company”)

NOTICE IS HEREBY GIVEN that the Annual General Meeting (“AGM”) of the Company will be held at the registered office,
75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 on Saturday 4th September 2021 at 12.30 pm for the following purpose.

  1. Approval of the Minutes of the AGM held on 12 Sept 2020.
  2. Discussion relating to any matters arising from the minutes of the 2020 AGM
  3. Chairperson’s Report.
  4. To receive and consider the Company’s audited financial statements for the year ended 31st December 2020 together with the reports of the directors and of the auditors thereon.
  5. To note the business of the Company.
  6. To appoint Auditors.
  7. To authorise the Directors to fix the remuneration of the Auditors.
  8. The following directors retire in accordance with the Constitution:
    (a) Mr. Kenneth Rowan
    (b) Ms. Una McCourt
  9. By separate resolutions to elect as Directors the following, in accordance with the Constitution and, being eligible, offer themselves for re-election:
    (a) Dr. John Roche;
    (b) Ms. Hazel Bridcut; – Position: Treasurer
    (c) Ms. Una McCourt
    (e) Ms. Roisin Glynn – Position: Vice Chairperson
  10. By separate resolutions to elect as Directors the following who offer themselves for election:
    (a) Mr. Patrick Cassidy – Position: Chairperson
    (b) Mr. Eoghan Clifford
    (c) Mr. Gareth Crowe
    (d) Dr. Ashling Holland
    (e) Ms. Fiona Nolan – Position: Secretary
  11. To transact any other business which may be properly transacted at an Annual General Meeting.


By order of the Board.

Una McCourt
Company Secretary
Dated this 11th Day of August 2021

Note – Only paid–up members who have paid their annual subscription on or by 26th June 2021 can be nominated for election to the Board of Directors and vote at the AGM on any resolutions.

Note: A member entitled to attend, speak and vote at the AGM is entitled to appoint a proxy to attend, speak and vote on their behalf.

A proxy need not be a Member of the Company


1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified