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Muscular Dystrophy of Ireland Company Limited by Guarantee will hold its 2021 Annual General Meeting (“AGM”) on Saturday, 4th September 2021 at 12.30 pm at the registered office of the company at 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77.

Due to the current Covid 19 pandemic and taking into consideration the health and safety of staff and members, the Board of MDI request that members do not physically attend at the Annual General Meeting but attend by Zoom Conference.

The links below will enable you to download all the relevant materials that you will need for the AGM:

Please note that there are twelve vacancies on the Board of Directors this year, as notified by email on 12th July 2021.  We received nine valid nominations by close of the nomination deadline on the 23rd July 2021.   These nominations are in accordance with our nomination procedure as stated in our letter of 12th July 2021.   Therefore, there will not be an election at the AGM on 4th September 2021.   Please see profiles of proposed directors here.

Could you please confirm your attendance by 5pm on Friday 27th August 2021 by emailing Company Secretary, Ms. Una McCourt at mdisecretary@mdi.ie or free-phone 1800 245300 and your details will be noted and passed to Company Secretary, Ms. Una McCourt in order for Zoom details to be forwarded to those who register their attendance.

Please note only paid-up members who have paid their annual subscription on or by 26th June 2021 can vote at the AGM on any resolutions.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified