Company Secretary – Dr Una McCourt

Una McCourt

Dr Una McCourt

Dr Una McCourt

Current Position on Board
Company Secretary

Current Position/Job Title
OpEx Lead at Bristol Myers Squib

Previous Position/Job Title
•             CI Lead Mallinckrodt/Guerbet
•             LSSMBB Abbott Ireland.

Current Membership of any Boards/ Committees
•             MDI Board
•             MDI Research Committee

Previous Membership of any Boards/Committees
•             MDI Board 23/09/2019 – 12/09/2020 (AGM)
•             MDI Research Committee from 23/09/2019

Why I want to be on the Board of Muscular Dystrophy Ireland:
MDI offers great support to their members and a service that is growing and changing with the needs of the members and the external environment.  I would like to help MDI to continue to deliver the best possible services to the members.

What I bring to the Board of Muscular Dystrophy Ireland as a Director:
I have strong experience in delivering numerous large scale and small projects throughout my career. I have also been heavily involved in strategy development and optimising the running of departments in a number of companies by implementing effective management systems.  I educational background is an biochemistry, where I obtained a PhD and in conjunction with working in the pharmaceutical sector I am very interested in the emerging potential treatments for MD.

How I can help Muscular Dystrophy Ireland achieve its mission:
I believe I can help MDI achieve its mission by providing them with support and guidance as a result of what I have learned throughout my career.  I have focused on many areas including, but not exclusively strategy, project delivery, scientific review etc.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified