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Board Member – Kenneth Rowan

Kenneth Rowan

Kenneth Rowan

Name
Mr. Kenneth Rowan

Current Position on Board
Director

Current Position/Job Title
Volunteer Administration Officer for a local club

Previous Position/Job Title
•             Voluntary Administration Officer for a local club

Current Membership of any Boards/ Committees
•             MDI Board

Previous Membership of any Boards/ Committees
•             MDI Board 13/08/2018 – 12/09/2020 (AGM)
•             I have been a volunteer of a local club and have helped with general administration work for them.

Why I want to be on the Board of Muscular Dystrophy Ireland:
The main reason I want to be on the board is I have been an active member in MDI for over 15 years and after serving on the Board for 2 years I feel I can still offer more to the organisation. And after my 2 years on the Board I have seen where Muscular Dystrophy Ireland is going and I would like the opportunity to continue being part of the journey.

What I bring to the Board of Muscular Dystrophy Ireland as a Director:
In terms of commitment I have been a member of the board for two years and all that involves.

How I can help Muscular Dystrophy Ireland achieve its mission:
What I think I would bring to the board is that as a member I can bring the needs of young members to the attention of the board.

 

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified