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Secretary – Fiona Nolan

Name

Fiona Nolan

Current Position on Board
Secretary

Current Position/Job Title

CEO – Coolock Development Council CLG

Fiona is the Chief Executive Officer of Coolock Development Council CLG.  She has experience in leading and managing teams; overseeing mergers; strategic/business planning; change management; HR and financial management; project management and fundraising.

She has an extensive understanding of the Irish Charity Regulator Governance code having recently led her organisation through the process. She has strong advocacy skills and an excellent understanding of the influencing public policy process. She has a deep understanding of the community development process and working specifically within disadvantaged communities.

Fiona has worked on peace and reconciliation Cross Border projects and on EU level and has had responsibility for the design and implementation of a range of large-scale enterprise and employment development and training initiatives

She has been a board Director/Chairperson of a diverse range of variety of charities, community groups and organisations.  Fiona is currently Chairman of Doras Bui CLG; Company Secretary of Northside Security Services CLG;  Chairman of the Northside Community Forum, Director of Muscular Dystrophy Ireland, Vice-Chairman of Social Enterprise Republic of Ireland Practitioner Council and a member of the Finance Sub-committee of Bonnybrook Parish

Fiona has a Degree in Marketing, a Diploma in Public Relations. She is a qualified Trainer and Business Coach/Mentor and has completed a CDP accredited Company Secretarial course. She is currently studying for a Diploma in Corporate Governance.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified