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Board Member – Eoghan Clifford

Name
Mr Eoghan Clifford

Current Position on Board
Board Member

Current Position/Job Title

Senior Lecturer NUI Galway and Academic Director of CEIM mentoring programme

Previous Position/Job Title

  • Industry and Research Environment
  • Member of NUI Galway disability committee
  • Secretary Galyway Bay Cycling Club

Current Membership of any Boards/Committees

  • MDI Board
  • Board of Trustees An Meitheal Comhshaol
  • Board of Directors Paralympics Ireland

Why I want to be on the Board of Muscular Dystrophy Ireland:
I have experience of competing as a cyclist at a national and international stage and believe promoting and enabling people with muscular dystrophy to be as active as possible.  I would also like to bring previous experience on boards and help develop areas such as research and education.  I hope to use my experience in helping MDI to continue to develop services.

What I bring to the Board of Muscular Dystrophy Ireland as a Director:

Professionally, I have experience in generating research funding, managing ethical issues in research. Educational activities and project/financial management.  As an engineer, I have been very interested in systems that can help improve quality of life for people with muscular dystrophy and want to promote activity and sport among members.

How I can help Muscular Dystrophy Ireland achieve its mission:
I believe I can work with MDI to help develop closer relationships with universities and increased opportunities for people who have various forms of muscular dystrophy.  I am very interested in promoting the role of activity and sport in mitigating symptoms and have a keen interest in ongoing research into muscular dystrophy.

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified