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Structure of MDI and Board of Directors

Muscular Dystrophy Ireland (MDI) has a National Executive Committee whose role is to determine policy. The members of the National Executive Committee are elected at the AGM each year. The MDI Executive comprises of a Chairperson, Vice Chairperson, Treasurer, Secretary and there is allocation for a further three members. The MDI Executive meets once a month to determine the management of MDI. The CEO is responsible for the day-to-day management and operation of the organisation.

MDI Executive Committee (Board of Directors)

 

The current Board of Directors are as follows:

Chairperson: John Roche
Vice Chairperson: Grace Greene
Secretary: Hazel Bridcut
Treasurer: Ephraim Purcell
Board Members: Kenneth Rowan
Chief Executive Officer: Elaine McDonnell

Company registered name: Muscular Dystrophy Society of Ireland Ltd.
Company registered office: 75 Lucan Road, Chapelizod, Dublin D20 DR77.

Registered Charity Number:
20012038
CHY Charity Number:
6849
Company Number:
60460
Country of registration:
Ireland


Member of the European Alliance of Neuromuscular Disorders Association

 

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified