Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.

MDI Policies and Procedures

Muscular Dystrophy Ireland (MDI) is committed to protecting both adult and child members from harm in all of its activities, and to providing the highest quality of care. This includes an obligation to respond with due speed and competence to a disclosure relating to abuse, whether the allegation is within MDI or in the child’s or adult’s life outside the organisation.

The MDI Policy & Procedures in relation to all aspects of our work can be download from this page. Further policies will be uploaded in the near future:

MDI The Charities Governance Code – The Six Principles of Good Governance
MDI Child Safeguarding Statement 10-2021
MDI Children First Policy and Code of Practice for the Protection of Children and Adults V8_UPDATED
MDI Members Complaints Policy V8 Sept 2021
MDI Members Feedback Policy V4 June 2021.
MDI Safeguarding Policy Statement 2021
MDI Safeguarding Vulnerable Adults Policy 2021 updated
MDI Privacy Policy UPDATED 071021
MDI Cookie Policy

Muscular Dystrophy Society of Ireland Ltd.
75 Lucan Road, Chapelizod, Dublin D20 DR77
Tel: (01) 6236414
Fax: (01) 6208663
Email: info@mdi.ie

Registered Charity Number: 20012038
CHY Charity Number: 6849
Company Number: 60460
Country of registration: Ireland

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified