We were so delighted to meet Henry Fleming and the incredible team who ran Coast2Coast recently in aid of the Irish Wheelchair Association and Muscular Dystrophy Ireland. Our CEO, Alan Breathnach, was honoured to receive a cheque for €16,810.75 from Henry’s nephew and MDI member, Conor McAuley. Our sincere thanks to you all and to […]
MDI News Update – December 2022
Our December 2022 issue of MDI News Update is out now. You can read it here.
Christmas video for MDI – thank you all at CJK Engineering!
Our heartfelt thanks to everyone at CJK Engineering who played a part in creating this magical Christmas video in aid of MDI. The video would not have been possible without the 108 incredible people who came together (on a Saturday!) to take part. For every person who came, CJK donated €50 which resulted in a […]
Research on Personal Assistance Service in Ireland published today
The Economic and Social Research Institute (ESRI) has published research on Personal Assistance Services in Ireland. It describes inconsistencies experienced by disabled people in accessing a PA service and its current limitations. You can view the full report here and a summary here. Overall, the evidence shows satisfaction among many service users, but suggests that […]
Webinar on spinal muscular atrophy (paediatrics) – MDUK – on 8 Dec
Join Muscular Dystrophy UK for their Muscles Matter 2022 seminar on spinal muscular atrophy (paediatrics) on Thursday 8 December 10am – 12pm. It will cover the latest research into as well as information and advice on living well. Speakers will include Professor Laurent Servais MD, PhD who is Professor of Paediatric Neuromuscular Disease at the […]
Webinar on Duchenne MD (adults) with MDUK on 5 Dec
Join Muscular Dystrophy UK for their upcoming Muscles Matter 2022 online seminar on Duchenne muscular dystrophy (adults) which will take place on Monday 5 December 2022 from 10am to 12pm. Speakers will include Professor Ros Quinlivan, Professor of Neuromuscular Disease, from UCL Queen Square Institute of Neurology. The session will cover the Adult North Star Network, and […]
