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Campaign for more neurology nurses comes to Sligo for February

We’re supporting the #patientsdeservebetter campaign for more neurology nurses which is coming to Sligo for the month of February. MDI is a member of the Neurological Alliance of Ireland. Register for the online launch on Tue 1st Feb at 12.00 here. Find out more about the campaign here.

NATIONAL HOUSING STRATEGY FOR DISABLED PEOPLE PUBLISHED

Disability Federation of Ireland (DFI) has welcomed the recent publication of the National Housing Strategy for Disabled People 2022-2027. Disabled people, like others in Ireland, have been living with a housing crisis for years – with thousands waiting on housing lists, unable to afford to adapt their homes or inappropriately housed. This policy was urgently […]

#AllHuman #AllEqual

IHREC, Irish Human Rights and Equality Commission are running a campaign at the moment, ‘Because we’re all human Means we’re all equal’, to create awareness about our attitudes towards people with disabilities. You can watch 13 people across Ireland share their experiences of living with a disability to promote greater awareness and see more campaign […]

IMPORTANT COVID-19 UPDATES FROM HSE

Changes to isolation and close contact rules: From today, Friday 14th January, the rules around self-isolation and close contacts have changed. As before, if you have symptoms of COVID-19 you should immediately self-isolate and get tested. People aged 0-3 and people aged 40 and over and all healthcare workers should get a PCR test. People aged 4-39 […]

JOB OPPORTUNITY FOR GRADUATES WITH DISABILITIES

The National Treasury Management Agency (NTMA) has partnered with AHEAD to recruit a graduate with a disability for one ring-fenced role on the NTMA Graduate Programme commencing in September 2022. The programme is open to graduates with degrees in Accountancy/ Commerce/Finance/Economics or a related discipline. The closing date for applications is Monday 24 January 2022 at 12pm. […]

Ryan Tubridy interviews Conor McAuley – Growing up with Duchenne muscular dystrophy

20-year-old Conor McAuley was diagnosed with Duchenne muscular dystrophy when he was three years old. He spoke to Ryan Tubridy this morning about growing up with DMD, coming to terms with the condition, his current interests and career ambitions, and his involvement in the Irish Wheelchair Association’s Youth Leadership Programme and other projects. You can […]

Waterford launch of campaign for more neurology nurses

We’re supporting the #patientsdeservebetter campaign for more neurology nurses which is coming to Waterford for the month of January. Register here for the online launch at 12pm on Tuesday 18th January. MDI is a member of the Neurological Alliance of Ireland. 

Virtual conference led by and aimed at students with disabilities

AHEAD and the Union of Students in Ireland are happy to present the Power of Disability Conference 2022, taking place January 20th and 21st. This two day event will include discussions, presentations and feedback sessions encouraging students with disabilities to be leaders on their own campuses and provide information for students and Students’ Union officers […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified