Limb Girdle Muscular Dystrophy (LGMD) Awareness Day – 30 September – is a collaborative effort to raise awareness globally of the rare neuromuscular conditions known as LGMD. As part of Limb Girdle Muscular Dystrophy Awareness Day, we are sharing facts about the condition https://www.lgmd-info.org/what-is-lgmd/lgmd-facts/. Please LIKE, COMMENT and SHARE this post to help raise awareness of LGMD! We invite everyone […]
Nationwide Campaign for More Neurology Nurses: First Stop Limerick
Join the Neurological Alliance of Ireland at their online event from 10am on Monday 4th October as they launch their #PatientsDeserveBetter campaign for more specialist nurses across neurology services. Nurse specialists play a crucial role in supporting people with neurological conditions. Increasing the number of neurology nurses will ensure that people with neurological conditions have improved […]
Safety notice for specific breathing devices
We wish to let you know that Philips has issued a Field Safety Notice for specific breathing devices. The Field Safety Notice informs customers and users of the devices of potential impacts on patient health and clinical use related to this issue, as well as instructions on actions to be taken. Additionally, the notification provides details of […]
Call for membership payment by 26 September
We are kindly asking all people who haven’t yet paid their MDI membership fee to please do so by 26 September 2021. For more information, click here.
17 facts about Duchenne muscular dystrophy
On World Duchenne Awareness Day, we are sharing 17 facts here about Duchenne muscular dystrophy. You can help raise awareness by liking and sharing!
UN CRPD Advocacy Training for People with Disabilities
Disability Federation of Ireland invite you to join them for a free online training which will focus on helping people with disabilities to use the United Nations Convention on the Rights of People with Disabilities (UN CRPD) as an advocacy tool. The training is open to people with disabilities and will focus on the use […]
MDUK Seminar on Duchenne MD
MDUK Muscles Matter 2021: seminar on Duchenne muscular dystrophy (DMD) on 9 September Join Muscular Dystrophy UK on Thursday, 9 September from 1pm-3pm for their MDUK Muscles Matter 2021 online seminar on Duchenne muscular dystrophy. The session will feature a panel of speakers and will cover the latest research into Duchenne as well as a […]