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Get ready for Make Way Day – Friday 24 September!

Make Way Day is a National Public Awareness Campaign that highlights the issues people with disabilities face getting around their local communities. This year’s campaign takes place on takes place on Friday, 24 September and the theme is “Make Way in My 5k” and “Hey, this blocks my way!” is the message. You can find out how to get involved and […]

Taxi Accessibility Survey

The National Transport Authority aims to improve Small Public Service Vehicle (SPSV – Taxi, Hackney and limousine) services for all, but particularly for people with disabilities who are using or might use this door-to-door transport service. They are currently seeking your experiences, opinions and advice on the demand for and accessibility levels of taxi, hackney and limousine […]

Paediatric-focused seminar on spinal muscular atrophy (SMA) from MDUK

Join Muscular Dystrophy UK on Monday 23 August 10am-12pm for their MDUK Muscles Matter 2021 online seminar on spinal muscular atrophy (SMA). The session will be paediatric-focused, with a panel of researchers, paediatric neurologists and physiotherapists. There will be presentations on the latest research into SMA, discussions on how to manage the condition as well […]

MDI Pre-Budget 2022 Submission

MDI has made a Pre-Budget 2022 Submission to government with recommendations based on issues raised by MDI members, as well as by the umbrella organisations we belong to. You can read the submission by clicking on this link MDI pre budget 2022 submission 3 August 2021

Sell Employment Course for People with Disabilities

Below are details of a course designed for people with disabilities who have a business idea and wish to undertake a training programme that will assist them to evaluate the viability of their business idea and develop their business skills.  For more details see poster below or email: chelsea.hollywood@tudublin.ie Self-Employment-for-People-with-Disabilities-Module

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified