Fun Events in June

ZOOM FAMILY QUIZ FOR MEMBERS UNDER 18 (and their family) Friday 11th June at 6pm PRIZES AND FUN FOR ALL For more details contact your local Youth Worker or call 086 6066108                         MDI BINGO EVENING FOR ADULT MEMBERS Monday 21st June from 6.30pm […]

What is myasathenia?

As part of Myasthenia Awareness month, we wish to raise awareness about this group of neuromuscular conditions. You can find out more about myasthenia by following this link If you’d like any further information, please contact us at

DDAI webinar on the Disabled Drivers’ and Passengers’ Tax Relief Scheme

MDI is happy to share a recording of a recent webinar on the Disabled Drivers’ and Passengers’ Tax Relief Scheme (and links to other relevant information) with our thanks to Richard Ryder at Disabled Drivers Association Ireland (DDAI). If you have any further questions, please contact your Family Support Worker. Recording of webinar: cYD1rl4OPrvBhDNnp3_0ke58f2x2Ojm2T_Y.tD0qww20aHfb-zSw Passcode: […]

CHAT about how Accessible Technology helps me

Global Accessibility Awareness Day 2021 #GAAD2021 We will CHAT about how Accessible Technology helps me When: Thursday, 20th May 2021@3pm The FreedomTech Team are looking forward to hearing from the real AT experts on the 20th of May at 3 pm. Six speakers who use accessible technology will share their personal stories, including the opportunities […]

New Wheelchair Liveable Home Form

For the first time, a wheelchair user in Ireland can apply for a wheelchair liveable home on their housing application. The new application form – from the Department of Housing, Planning, Community and Local Government – was published last month and acknowledges the need for wheelchair liveable accommodation to be included as a requirement. The Irish […]

Update from HSE – online registration for COVID-19 vaccine

From today, Tuesday 4 May, people aged between 50 and 59 can register for their COVID-19 vaccine online. To avoid delays when we open registrations this week, we are asking people to register on different days depending on their age:  Registration dates and age groups Tuesday, 4 May, people aged 59 should register Wednesday, 5 […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified