Children and COVID-9 vaccine

Children and COVID-9 vaccine The safety data isn’t there yet to guide COVID-19 vaccination in children as it has only been studied on adults. The HSE will continue to provide updates on the vaccine schedule over the coming weeks and months. MDI will continue to keep an eye out for any developments relating to children […]

HSE update – 23 April – COVID-19 vaccination programme

The vaccination programme continues to be rolled out nationwide, and as of 20th April 1,240,965 vaccines have been administered in Ireland. Group 3 – aged 70 and over Vaccination of people aged 70 and over continues by GPs, who are now largely vaccinating the group aged 70 to 74.  Our National Ambulance Service is also providing […]

HSE update on COVID-19 vaccination programme

The vaccination programme continues to be rolled out nationwide, and as of 13th April 1,094,964 vaccines have been administered in Ireland. While we have largely completed vaccinations for the first 2 allocation groups, we are still working to vaccinate these groups: Group 3 Vaccination of people aged 70 and over continues by GPs, who are now […]

Update on AstraZeneca vaccine and vaccination programme

All vaccination appointments on 13 April cancelled As you may be aware, the HSE announced that all AstraZeneca COVID-19 vaccination appointments planned for today, Tuesday, 13 April have been cancelled. If you had an appointment to get the AstraZeneca COVID-19 vaccine today, you will be contacted to rearrange your appointment. The HSE is now assessing […]

Self Care Course for Carers

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 session course for Carers & Parents. Beginning Friday 30th April and running once a month from April to December From 6:30pm-8pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie/0866066103 by Friday the 23rd of April. For more […]

Self Care Course for Members

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 week course for members with muscular dystrophy. Beginning Wednesday 28th of April and running for 8 weeks from 11:30am-1:30pm on Zoom To register for this course, contact your local family support worker or Ewa at respite@mdi.ie / 0866066103 by Friday the 23rd of April. For more […]

Parent Project MD Conference

Parent Project Muscular Dystrophy Conference Registration is now open for this year’s Parent Project Muscular Dystrophy (PPMD) virtual conference. It takes place from 23 to 26 June and promises four days of information education, conversation and community. Find out more here https://www.parentprojectmd.org/get-involved/attend-events/annual-conference-2021-virtual/ Please note timings are USA Eastern Daylight Time (EDT).

DFI Housing Survey

DFI Survey on Housing for People with Disabilities in Galway, Mayo and Roscommon All Local Authorities are responsible for reviewing and renewing their Strategic Plans for Housing People with Disabilities. This process has begun in all Local Authority areas. The Disability Federation of Ireland are seeking feedback from people with disabilities and / or their […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified