Survey on the Cost of Disability

Have your voice heard by taking part in a survey on the Cost of Disability Last week a survey on the Cost of Disability was posted to a random sample of over 33,000 customers in receipt of relevant disability payments, as well as a survey specifically designed for the over 1,000 customers in receipt of […]

Flu Vaccine for Children aged 2-12 years

Flu Vaccine for Children aged 2-12 years This autumn, children aged 2-12 years are offered the flu vaccine free of charge. The vaccine is administered by the GP or pharmacist using a nasal spray. Children carry the flu virus in their system longer than adults do and they can spread the flu easily to others. […]

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals

COVID-19 Guidance on Visitations to Inpatient Areas of Acute Hospitals including Children’s Hospitals, Rehabilitation Services and Other Healthcare Settings Providing a Similar Intensity of Care This guidance is for visiting inpatients in acute services. You can download the guide here.

COVID-19 Guidance for Older People and Others at Risk

COVID-19 Guidance for Older People and Others at Risk of Severe Disease on Reducing Risk of COVID-19 Infection The guide, developed in consultation with Alone, SAGE and the National Care Alliance, is for people who live in the community and for those who help them if and when they need help. You can download the guide […]

Public Health Information

As always, for the most up to date information and advice on Coronavirus, please go to: and Clinical and professional guidance relating to COVID-19 is available on where you’ll find up to date guidance for healthcare settings and non-clinical settings.

MDI / Citizens Information Centre Q&A Session

MDI are running a free Citizens Information and Q&A Session on Benefits & Entitlements for People with Disabilities on the 17th of November via Zoom for members. If this information session is of interest to you, please see flyer below for more information. Due to demand we are now running the same workshop on two days: Monday 16th […]

Important information and Covid 19 guidance as we enter Level 5 restrictions

Dear Members, We hope this finds you well. We are emailing you to keep you up-to-date on our services and important Covid 19 guidance and information from the HSE as the country goes onto Level 5 restrictions for the next six weeks. If you have any questions or support needs, please do get in touch […]

Mindful Connections Workshop – 10th November 2020

We are please to announce an new online Mindful Connections Workshop aimed at helping you to reflect on your overall wellbeing and build on your self-compassion and other skills to remain happy and motivated. The Workshop will begin on Tuesday 10th November from 12PM-1PM, and will be run through ZOOM. due to demand we have […]

Charcot-Marie-Tooth awareness month 2020

MDI would like to let you know about two webinars coming up to mark Charcot-Marie-Tooth awareness month. Please be aware some information in the webinars may be relevant to the UK only. Charcot-Marie-Tooth UK is hosting a Q & A session with Professor Mary M Reilly at midday on Friday 16 October. Professor Reilly will answer questions […]

Budget 2021

As members of Disability Federation of Ireland, MDI is sharing with you the DFI’s initial press statement in response to Budget 2021 and a summary sheet of the key measures that relate to people with disabilities, their families and organisations. They will continue to update the summary sheet as more detail arises on budget commitments. […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified