Face Coverings & Covid-19

Face coverings help prevent people who don’t know they have the virus from spreading it to others. They should be worn anywhere it’s difficult to stay 2 m apart, like shops or public transport, or when visiting anyone who is more at risk. This includes people aged over 70, or people who are medically vulnerable, […]

Covid-19 Information Updates – HPSC & HSE

As HSE information on Covid-19 is live and updated regularly, we advise you to access it directly from these sites:   HPSC website: https://www.hpsc.ie/…/coronavirus/novelcoronavirus/guidance/ HSE page with disability-specific resources: https://www.hse.ie/…/news…/covid19-updates/partner-resources

Communication of New AGM Date

Please find below, Communication of New AGM Date for Muscular Dystrophy Ireland:   Dear All We would like to advise you that Muscular Dystrophy Ireland will now hold their Annual General Meeting on Saturday 12th September 2020. The well-being of Members, Management and Staff is a primary concern for The Board of Muscular Dystrophy Ireland […]

Sláintecare and HSE. Free online counselling

In response to the mental health challenges posed by COVID 19, MyMind is now working with Sláintecare and the HSE to provide fully subsidised counselling, psychotherapy and psychological support for individuals over 18 years in all regions of Ireland. The main mental health issues include issues arising from unemployment, bereavement, social isolation/cocooning, illness, stress, depression, […]

Free online course in Mindfulness and Compassion

We thought that some of our members might be interested this free Mindfulness and Compassion six-week course which is available online at this link: https://www.sueredmond.com/onlinecourse. Sue Redmond has a Diploma in Mindfulness-Based Stress Reduction Teacher training and Mindfulness-Based Compassionate Living Teacher training.


MDI Youth Workers are running a comic book writing competition! Age categories: Under 12, 12-17 years old and 18-25 years old. Prize €50 voucher for each category. Contact your Youth Worker for a comic book writing pack. Send your creations to your Youth Worker to enter the competition. If you don’t have a Youth Worker […]

Resources and Supports – Family Carers Ireland

Family Carers Ireland provide a range of services and supports to family carers and provide a national voice to represent fairness for carers. They are offering a number of Resources and Supports for family carers, find out more from the links below:   Counselling Free online and telephone counselling service for family carers – https://familycarers.ie/help-and-advice/online-and-phone-counselling-service/ […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified