MDI Virtual Youth Club

The MDI Youth Service is all about giving our young members the opportunity to get together, form friendships, share experiences, have fun and build confidence and self-esteem. It is primarily about meeting up with our members, face to face, giving our young members a social outlet however the Youth Worker team have now been exploring […]

NAI Survey

The Neurological Alliance of Ireland has launched a survey asking people with neurological conditions and/or family members to take a short survey in order to promote a better understanding and response to their needs during the COVID19 outbreak. The closing date for responses is Friday 1st May. Click the link below to take the survey […]

Muscular Dystrophy Ireland Membership Support Survey – Covid 19 Crisis

  We’re conducting a survey and we would really appreciate if you could take a few moments to complete this online survey. Your opinion is very important to us. This survey is solely for adults, over 18’s only, who are either individual and family members of MDI. We want to find out how we can […]

MDI Communications Update – Email Systems

MDI are currently updating their email systems to better communicate directly by email with our members nationally during Covid 19. By giving your consent to receiving emails from us, you will only receive emails to let you know about MDI activities and developments relevant to your membership. If you consent and have not done so to date with your […]

Postal Correspondence

Dear All Following a meeting of the MDI Management team, a decision has been made to limit all mail and postal deliveries to Head Office until further notice. We would ask everyone to please assist MDI in this effort. If you have sent post to Head Office in the past week,  particularly in relation to […]


The MDI Youth Workers have put together a fun activity for your son/daughter to get involved in if you wish. This one is the one for those under 12 years of age. Click on the images below to download and open a PDF version of same which you can then print out.  Complete the “riddles” […]

Update on Beaumont Hospital Respiratory Clinic April 3rd

  Dear All We have received confirmation from Beaumont Hospital that all outpatient appointments that had been scheduled for 3 April with the Respiratory Clinic have now been cancelled. Professor Costello will be going through his patients and making contact with them all in due course.   Keep safe and well, From the MDI Team […]

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified