Nomination Letter from Chairperson, Mr. Patrick Cassidy

Dear Member

As a paid-up member of MDI, we are very pleased to let you know that, as of 17th April 2023, the nominations process for potential election to our board of directors is now open.

This year, the board has made the decision that the AGM process will be carried out in a hybrid manner – electronically by Zoom facility and in person at MDI’s Offices, 75 Lucan Road, Chapelizod, Dublin D20 DR77.  The date for the AGM has been agreed for Saturday, 27 May 2023.

You can find more information here – Call out to paid up members

The nomination pack can be downloaded here

It contains the following:

  • Nomination form
  • Application form
  • Board-member role specifications
  • List of paid-up members to 31 March 2023

Please note that you can download the PDF nomination and application forms and fill them in on your personal computer.

All nominations received by the deadline date of 21 April 2023 will be reviewed by the board against pre-set published criteria (as outlined in the nomination pack above). If the board assesses that there is a greater number of eligible nominees than positions on the board, then an election will be held across the entire paid-up membership. Details of election, if applicable, along with biographic profiles will be circulated to paid-up members on 28 April 2023. The information provided in the biographic profiles will be taken directly from the nomination forms submitted to MDI.

Please note that ‘paid up members’ are MDI members who have paid their annual subscription on or by the 31 March 2023. A list of paid-up members to 31 March 2023 is included in the nomination pack above.

Please send completed board nomination forms (nomination and application forms) to Company Secretary, Ms Una McCourt: by 5pm on Friday, 21 April.

Summary of key dates:

  • Board member nomination period – 17 April to 5pm, 21 April 2023
  • Notice of AGM published and sent to members – 5 May 2023
  • Deadline for proxy forms and registering attendance at AGM – 19 May 2023
  • MDI AGM – 27 May 2023

If you have any queries on this process, please contact Ms Una McCourt, Company Secretary at

Yours sincerely

Mr Patrick Cassidy
Muscular Dystrophy Ireland CLG

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified