Muscular Dystrophy Ireland

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                                                                                        MDI Respite & Youth Support

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                                                                                        The MDI Youth / Respite Team

                                                                                        The respite service is an essential support for people living with muscular dystrophy and their families. Support is coordinated by the Respite Coordinator, Kate Power in conjunction with Margaret Goode (Family Support & Clinic Coordinator) and the CEO, Mr. Joe Mooney. MDI Respite Services are categorized as follows:

                                                                                        1. MDI Youth Respite
                                                                                        2. MDI Emergency Respite
                                                                                        3. MDI PA Respite
                                                                                        4. MDI Financial Contribution

                                                                                        In 2009 MDI focused on emergency respite and / or in home personal assistant / home help. The financial contribution support service was limited to aids & appliances within Ireland.


                                                                                        MDI Definition of Respite

                                                                                        Respite care is short-term care that helps a family take a break from the daily routine and stress. Respite care can occur in the person’s / family home or in a variety of out-of-home settings, and can occur for any length of time depending on the needs of the family and available resources. MDI recognises that the person / child with muscular dystrophy and family members both need to avail of respite care services in order to maintain physical health and emotional wellbeing.

                                                                                        As you can see from the following table MDI continues to prioritise and fund more respite each year. Respite includes summer camps, emergency respite, personal assistant hours, breaks provided in the home, social activities and transport.