Very often the Information Service is the first source of assistance for people affected by a neuromuscular condition. It provides information about neuromuscular conditions and other subjects such as benefits, holidays, transport, support groups, genetics etc. Enquiries are received by letter, email or over the telephone from people who have neuromuscular conditions, their family and friends, professionals such as occupational therapists, public health nurses, general practitioners and from members of other organisations.

The Information Officer gathers and disseminates information on the neuromuscular conditions.  They would also keep abreast of all developments in research throughout Europe and America. At the time of diagnosis of a neuromuscular condition, the person with muscular dystrophy and their family will receive basic information about the symptoms and progression of the condition from their medical consultant. Families often find it difficult to absorb all the information they receive at this time and it is recognised by our service that families should have access to information whenever they require it.
If you have a request for information, please contact the Information Officer and they will try to fulfil your request.

MDI Ireland

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Published on: 2007-02-11 (4568 reads)