Fundraising Projects

While all of MDI’s services are supported by fundraising, we currently are focusing our efforts on supporting four key projects:

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Project One: ?Respite Camps

MDI Respite Camps are designed specifically enable members to participate in activities and excursions in an environment that is free from the normal barriers they often encounter in their daily lives.
These help to provide social, educational, and personal development experiences for members that help to boost their self-confidence & independence.
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Project Two: MDI Transport Project

Muscular Dystrophy Ireland’s Transport Service coordinates a fleet of accessible mini-buses, supporting both the needs of MDI members and the provision of other MDI Services.?
The overall aim of the service is to reduce social isolation, and promote integration and opportunity through the provision of MDI Core support services and accessible transport service for our members.
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Project Three: Home from Home Apt

?The MDI ‘Home from Home’ Self Catering Apartment is a self-contained fully wheelchair accessible apartment which is available for short term stays for people with a physical or sensory disability. The apartment is fully wheelchair accessible and is fitted with assistive living aids and equipment that affords some guests an opportunity to travel and enjoy stays that otherwise would not be possible.
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Project Four: Research

Muscular Dystrophy Ireland’s Research Fund supports various research projects, both at home and abroad, that help to improve the understanding and treatment of neuromuscular conditions.
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As well as medical research, MDI plans to develop supports for social research that will inform and improve the provision of services to members
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1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified