Fundraising and PR

MDI Awareness Day Photoshoot

MDI Awareness Day Photoshoot

As a voluntary organisation, MDI depends solely on donations and state contributions. We host a variety of national fundraising events throughout the year to fund respite support and youth services and medical research into the condition.

National events include:

  • MDI’s National Awareness Day & Fundraising Appeal on Valentine’s Day
  • The VHI Women’s Mini Marathon Dublin, June Bank Holiday
  • Christmas Cards
  • Ireland Bike Fest, Killarney, Co Kerry, June Bank Holiday

Members, friends and supporters of MDI also fundraise on a regional and local level, taking part in fun activities and organising different events which are so important in assisting MDI to continue the delivery of support services and funding medical research.

Examples of just some of the local and regional fundraising:

  • Raffles / Auctions / Table Quiz
  • Concerts
  • Walk athons / Sleep athons
  • Church gate collections
  • Parachute clubs / Fancy dress nights

For more information about MDI’s Fundraising / PR activities, visit the pop out links from the Fundraising/PR menu on the top of this page or contact MDI’s Fundraising / PR Coordinator, Amy Bramley at

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified