Newsletters

The MDI Newsletter (MDI News Update) is a quarterly newsletter which is produced and published from the MDI Office every three months. Its main purpose is to maintain a regular contact with all members of MDI and to keep everyone informed about updates on recent research, information, fundraising, social activities and details of some upcoming events.

Spring - 2019 (PDF) Size 2.62 MB

Download – Summer – 2019 (PDF) Size 3.64 MB

It is also intended to act as a fundraising platform where individuals and groups can publicise or acknowledge fundraising events and where members can relate any experiences which they may wish to share with fellow members. We would therefore encourage members and interested parties to send in articles, poems, photographs etc. for inclusion in future issues. Submissions can be emailed to: hubert@mdi.ie.

MDI are constantly updating our database of MDI member contact details. We actively encourage the use of email as opposed to standard post, for contacting our members. If you would like to receive information from MDI, such as updates and newsletters via email instead of standard post please complete and submit the form via the link below and we will update your contact details.

To request future copies of the MDI Newsletter by Email or to unsubscribe and no longer receive emails from us, click on this link and complete the form therein.

2019 Newsletters

Summer 2019 (pdf – size: 3.64 mb)
Spring 2019 (pdf – size: 2.62 mb)

2018 Newsletters

Spring 2018 (pdf – size: 2.25mb)
Summmer 2018 (pdf – size: 2.59 mb)
Autumn 2018 (pdf – size: 4.25mb)
Winter 2018 (pdf – size: 3.73mb) – Web only version

2017 Newsletters

Autumn 2017 (pdf – size: 3.66mb)
Summer 2017 (pdf – size: 3.36mb)
Spring 2017 (pdf – size: 2.84mb)

2016 Newsletters

Winter 2016 (pdf – size 3.36mb)
Summer/Autumn 2016 (pdf – size:3mb)
Spring 2016 (pdf – size: 2.84mb)

2015 Newsletters

Winter 2015 (pdf – size: 2.82mb)
Autumn 2015 (pdf – size: 2.15mb)
Summer 2015 (pdf – size: 5.21mb)
Spring 2015 (pdf – size: 9.74mb)

2014 Newsletters

Winter 2014 (pdf – size: 6.21mb)
Autumn 2014 (pdf – size: 2.98mb)
Summer 2014 (pdf – size: 2.19mb)
Spring 2014 (pdf – size: 2.03mb)

2013 Newsletters

Winter 2013 (pdf – size: 2.09mb)
Autumn 2013 (pdf – size: 2.70mb)
Summer 2013(pdf – size: 2.19mb)
Spring 2013 (pdf – size: 2.74mb)

2012 Newsletters

Winter/Autumn 2012 (pdf-size:8.5mb)
Summer 2012 (pdf-size:5.3mb)
Spring 2012 (pdf – size: 5.56mb)

2011 Newsletters

Winter 2011 (pdf – size: 4.11mb)
Autumn 2011 (pdf – size: 4.60mb)
Summer 2011 (pdf – size: 3.22mb)
Spring 2011 (pdf – size: 2.56mb)

2010 Newsletters

Winter 2010 (pdf – size: 2.8mb)
Autumn 2010 (pdf – size: 2.95mb)
Summer 2010 (pdf – size: 3.43mb)
Spring 2010 (pdf – size: 2.31mb)

2009 Newsletters

Winter/Autumn 2009 (pdf-size:3.5)
Summer 2009 (pdf – size: 3.58mb)
Spring 2009 (pdf – size: 2.96mb)

2008 Newsletters

Winter 2008 (pdf – size: 2.84mb)
Autumn 2008 (pdf – size: 2.67mb)
Summer 2008(pdf – size: 1.85mb)
Spring 2008(pdf – size: 1.45mb)

2007 Newsletters

Dec 2007 (pdf – size: 1.98mb)
Oct 2007 (pdf – size: 1.93mb)
August 2007 (pdf – size: 1.75mb)
June 2007 (pdf – size: 1.05mb)
March 2007 (pdf – size: 1.32mb)
Jan 2007 (pdf – size: 852kb)

2006 Newsletters

Nov 2006 (pdf – size: 1.68mb)
Aug 2006 (pdf – size: 783kb)
June 2006 (pdf – size: 1.93mb)
April 2006 (pdf – size: 835kb)
Feb 2006 (pdf – size: 1.01mb)

2005 Newsletters

Nov 2005 (pdf – size: 1.19mb)
Sept 2005 (pdf – size: 1.42mb)
July 2005 (pdf – size: 1.93mb)
May 2005 (pdf – size: 1.96b)
March 2005 (pdf – size: 2.01mb)
Jan 2005 (pdf – size: 1.13mb)

2004 Newsletters

Nov 2004 (pdf – size: 1.03mb)
Sept 2004 (pdf – size: 826kb)
July 2004 (pdf – size: 973kb)
May 2004 (pdf – size: 643kb)
March 2004 (pdf – size: 1.65mb)
Jan 2004 (pdf – size: 602kb)

2003 Newsletters

Nov 2003 (pdf – size: 1.06mb)
Sept 2003 (pdf – size: 1.66mb)
July 2003 (pdf – size: 1.38mb)
May 2003 (pdf – size: 1.27b)
March 2003 (pdf – size: 915kb)
Jan 2003 (pdf – size: 1.38mb)

2002 Newsletters

Nov 2002 (pdf – size: 1.12mb)
Sept 2002 (pdf – size: 814kb)
July 2002 (pdf – size: 567kb)
May 2002 (pdf – size: 194kb)
March 2002 (pdf – size: 339kb)
Jan 2002 (pdf – size: 257kb)

2001 Newsletters

Nov 2001 (pdf – size: 225kb)
Sept 2001 (pdf – size: 222kb)

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1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified