Who MDI Supports
MDI supports people who have muscular dystrophy and related neuromuscular conditions and their families. These conditions are characterised by the progressive weakening and wasting of the muscles. They can affect adults and children. Some forms arise at birth or in childhood, others may not manifest themselves until later in life. Each type of muscular dystrophy arises from a different genetic mutation or deletion which is inherited from one or both parents or is due to a spontaneous mutation. This means that there are families who have more than one member with the condition.
There is no cure for muscular dystrophy but there have been huge advances in increasing the quality of life for people with the condition and scientists around the world are working hard to develop new treatments.
From 2006 to 2018, MDI’s membership has increased by just under 63% (click on the graph on the left to zoom in). MDI also supports the extended families of people with neuromuscular conditions, including parents, carers and siblings, and provides support and information to healthcare and educational professionals. Our network of support extends to over 4200 people.