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Rare Disease Survey
The Genetic and Rare Disorders Organisation (GRDO) is conducting
a survey of people with rare conditions: Rare Disease in Ireland – Your Experience. Please click here to complete the survey. | Standards of CareA new section on Standards of Care has been added to the MDI website. Please click here to access information about international consensus statements on diagnosis and care for Duchenne muscular dystrophy, spinal muscular atrophy and congenital muscular dystrophy.
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Our Mission Statement
Muscular Dystrophy Ireland aims to provide information, advice and support to people with neuromuscular conditions and their families through a range of support services. Our objective is to promote through practical empowerment, independent living for people with the condition muscular dystrophy. MDI supports advocating for services to enable people with neuromuscular conditions to fully participate in society and to live a life of their own choosing. MDI also aims to support and fund research into neuromuscular conditions.
